
Helping baby Kayli and family
Donation protected
Hi, my name is Amber, in the picture is my 2 month old daughter Kayli. Since birth she always had this little weird sound that we would hear while breathing but only when I breastfed her or when we would lay her on her back. She always loved to lay on her sides. The sound had got more louder and consistent and she was seeming to have a hard time getting air in so on January 2, 2022 I brought her to the hospital because of it. The decided to keep her over night and to have the E.N.T(ears,nose and throat) doctors check her out. They did an exam where they took a camera and looked down her nose and throat. That found a lump and did they first surgery where they cut pieces of it to test and she what it was. My baby ended up having to be intubated because she didn't do to good coming off the anesthesia and her throat was swollen so it made it even harder for her to breathe on her on. We spent 5 days in the ICU. On January 8th I found out that my baby had a mass tumor in her neck that is blocking part of her airway. It is a cancer called neuroblastoma and it usually found in babies stomach but hers is a rare kind that was found in her neck and due to where it's located that had to run more test before they can make a decision on what to do. She has undergone multiple procedures/surgeries within the past two weeks. The have do every test that is possible for this cancer. As we waited for a few of those test to come back, on January 16 my baby face had changed within just a few hours she woke up from a nap screaming and when I went to pick her up her face looked as if she was having a stroke. The right side of her face was droopy and she could not close her eye plus her face was swollen. I thought it could of been a stroke or something she had an reaction to from prior testing and surgery/procedure they did that following Friday. I'm glad to say it wasn't, but it was from the tumor growing and pressing down on a nerve. They are unsure if her face will for back to normal. As I write this ,today is January 19th 2022 and I have learned that the tumor has grown and is now growing towards the back of her skull/brain and that they will like to do surgery tomorrow to remove as much as they can and then she would have to get chemo. I'm writing this to say I need a little help with paying for these thing and some with bills I will have due to me being off work. I do have insurance and they will pay for half but I have already got a co-pays bill that I can't afford right now. I have two more daughters and I will need help keeping up with my bills and paying the co-pays from the insurance. Just a reminder yes, I would get PTO from my job but I don't have any more due to I just came off maternity leave and only spent three days back at work and then this occurred. Please help! What ever u can give will be appreciated. Please and Thanks you
Organizer and beneficiary
Amber Waddell
Organizer
Detroit, MI
Janine Shepherd
Beneficiary