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Help for Sophia''s seizures

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We desperately need eveyones help. We are Sophia's parents Darren and Danielle we have set up this fundraising page as we have been left with no other alternative but to seek medication for Sophia outside of the uk.

Our little girl is 5 years old and from 5 months old has been in and out of hospital due to a rare, catastrophic form of epilepsy called dravet syndrome. This syndrome includes so many different seizures whch include tonic clonic, myoclonic, complex partial, focal and status epilepticus. Sophia has had various different medications and the current medications aren't working for her so her doctors tried to source her medicinal cannabis to help with the seizures. Sophia was unfortunately turned down via compassionate grounds by the pharmaceutical company. So we are left waiting for our government to legalise, license and regulate this drug. Sophias consultant wants this for her but his hands are tied with licensing.

We can't wait that long as every seizure has the potential to kill our daughter.

Sophia's seizures are getting worse, happening more frequently and more aggressively than ever so we need everyone's help to give Sophia her childhood back. To let her enjoy and explore the world around her like every child instead of taking seizures and that's another day she has lost.

The seizures have affected her development and she attends a special needs school but Sophia is a bright little girl who loves music and painting.

We are taking a massive risk to get Sophia this medication but are at just as much risk sitting back waiting for our government bodies to license these products.

Anyone that has had the pleasure of meeting Sophia says she's always smiling and the happiest little girl.

The money will be used to fund Sophia's medication and treatment abroad and there will be two signatories to oversee this.

We thank you in advance for your kindness, generosity and support for our little Angel.

Please follow us on Facebook - help for sophias seizures to keep up to date with Sophia's journey.



Darren Gibson

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