Postural orthostatic tachycardia syndrome is defined by excessive heart rate increments upon upright posture. While the hallmark of POTS is an excessive heart rate increment upon standing, patients often exhibit numerous symptoms of autonomic nervous system dysregulation, In people with POTS, the system seems to be out of balance and blood is not going to the right place at the right time to do what the body needs.
Sayde’s P.O.T.S was triggered after a simple back surgery in 2010. Since then, Everything your body does that you usually don’t have to think about like blood flow, heart rate, blood pressure, dilation of pupils, temperature control, memory, stomach and intestinal function etc… for Sayde, is no longer working properly. Her blood pools into her legs after standing for a few minutes, blood pressure plummets and she will either black out or pass out. In addition she suffers everyday from severe fatigue, palpations, migraines, chest pain, joint pain, visual disturbances, inability to handle heat, brain fog and the list goes on very long. Eating is a major problem because of bloating, constant nausea and inability to process soy, dairy, gluten, nuts or any type of starch even in its most minute form. Maintaining her weight is very difficult.
There are only a handful of doctors in the world that specialize in the treatment of P.O.T.S and the waiting lists can be 1 to 3 years long. This past May, out of desperation we sought out alternative treatment and an herbal protocol almost killed her…she was in ICU for a week.
After a 4 year long battle, Sayde has gotten “bumped” to the top of the list of the center of one of the Leading POTS specialists in the nation and has an appointment on October 20, 2014 in Toledo Ohio!!!!
Sayde’s Heart: “I want people to know my story so they can better understand P.O.T.S . With education and research, hopefully it can help all the people that suffer from it, like many I have met along my journey who have it even worse than me.”
It is our hope that getting Sayde to this doctor and starting treatments specific to her condition will improve her quality of life and give her a better future. We have exhausted all our resources paying for past doctor trips, hospital & medical expenses, monthly medications and care. Even with the Ronald McDonald house waiting for us, we don’t have the money to get there.We will have to repeat this trip again in 6 months and again 6 months after that.We believe that God can make a way when there seems to be no way and often uses people to make miracles happen.
We appreciate your thoughtfulness, prayers and any effort to help us raise the funds for Sayde’s trip, and to create awareness for P.O.T.S/ Dysautonomia. Sayde’s story is not over and we look forward to sharing her happy ending with you!
For more information on POTS please visit:
- Nina Saville
- Amanda and Ryan Bodiot
- Pam Johns
- Shelly Silverberg
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