Update: 8/8/25

It's been a while since my last update. After my partial thyroidectomy in January, I was hoping I would be miraculously better but things didn't go as planned. The RFA's got done in my legs a few months later and I just put off more treatments for another six months at least for now. Still having issues. They want to do foam closures but I'm not feeling it. Neck ultrasound the other day shows a new nodule. Not ideal but not surprised, it's also small enough to wait it out at only .7cm. Last time was a long process and way too much in terms of testing but now I know what I'm in for. I'm more prepared. Trying to remember that everything happens for a reason and hang in there.

Over two years ago, I started to deteriorate.

Right now I am looking at a TR4 (SUSPICIOUS) nodule on my right center thyroid lobe. It's approx 3.5 cm. The lobe is also enlarged and will need to be removed. As of my last ultrasound looks like there is lymph node involvement starting and my isthmus is at the max size. I am not a medical trained individual in thyroid but I don't believe it's great news. DNA biopsy is Aus/flus and indeterminate. They classified it as consistent with follicular and primarily hurtle cells. Given it follicular and consisting of hurtle cells it needs to come out in order for them to see if it has invaded my vascular system which would indicate it positive for cancer. Hurtle cells and follicular nodules must have surgery to be tested because hurtle cells cancer is super rare and they don't have molecular testing for it. Anyone looking for more details message me.

I have six kids at home and a great husband. We struggle just to get by but none of them can lose me and this has been hard on all of us. I need to get this out, it should've already been out. I'm tired of people afraid to touch it, afraid of my health issues and me not making it through. I need this and I need it from capable people. I have been wasting a lot of time back and forth to hospitals and doctors. I am not getting better on my own.

Ideally, I was trying to get to these capable people at the Clayman center in Florida. They specialize in thyroid issues and surgery and cancers expecially the rarest hurtle cells which is what my biopsies show. I forwarded over my info, they are known for getting these surgeries done quick, probably within a month or around that. The problem today is that they are saying I need to be self pay for 20-30k just for the surgery, this does not include travel and hotel. Last year when I contacted them originally they had said they take my insurance but when it came down to it, they can't accept it from my state. I would literally have to move there and apply for insurance there. I can't do that.

So for now, anything I raise is going to be used to take care of our vehicles and for gas to get to these appointments at to keep traveling to get the right doctor in my area. I'm not going to stop until it's out and it's got to be soon.

More of my back story:

This all started with my joints, diagnosed autoimmune arthritis but unknown other than inflammation in my blood, positive Ana, and positive for c reactive proteins.

Last June I ended up in the ER because my toes and feet. Serious veinous insufficiency was diagnosed as Raynaud's but it's not. Eventually sent to vascular and Was offered surgery to try to reroute veins but declined because was unexpectedly pregnant. My feet, toes and legs freeze every day. They burn, they are numb and it hurts. Showers will help but it's a constant problem I have been learning to deal with. I've developed severe cramps in my toes, feet, hips, hands, and neck. It's to the point when they happen in my hands I can't move my fingers for a bit they get stuck. They say none of this is caused by the nodule but I don't believe it for a second. I tried taking tumeric last year for the inflammation and then felt this nodule burst and spray. I couldn't tell if it was in my throat or my lung, but I felt it and that was exactly a year ago last month. When it happened I heard some weird electrical noises in my chest and ever since I've been struggling with high blood pressure. It was because of that incident that they found my nodule and another incidental one in my lung. Eventually that will get checked but this one, this is the big one. The thyroid controls blood pressure it controls so much, yes they say my thyroid numbers are within range but my thyroid is not in the right range for the rest of my body and I need to be fixed. Last year on my birthday my Endo, Dr tang called said he was 70 percent sure it was cancer but then I ended up pregnant two days later and they wouldn't touch my nodule. After serious high risk miracle pregnancy here I am still waiting for removal! With my health a lot of surgeons are very hesitant.

At the moment I am still in the process of finding the right surgeon. The Clayman center would be ideal but now we are looking at a goal of 30-40k with travel. I wish I could ask but I cant.