I´m Šárka and this is my beautiful husband Diego. On Sunday 12th of July 2015 we both had finished work in the afternoon and we were planning on having our regular Sunday dinner at home. I was talking to Diego when I noticed that he was behaving strangely. I didn´t know what was going on at this time, I started yelling at him but I did not get any respond back. He slowly started to shake and wasn´t able to answer to me. He felt to the ground and collapsed right in front of me. I was devastated seeing him and not being able to help.
Diego had been unconscious for about half an hour before we were taken to the Hospital. Once we arrived to the Gold Coast Hospital doctors performed numerous tests including a MRI scan. The results indicated that Diego has a left posterior paretial lesion which most likely represents a low grade glioma.
The neurologist/neurosurgeon team recommended an immediate brain surgery. Despite the diagnosis doctors were concern about the tumour location and so they decided to monitor him on regular basis and only prescribed anti-seizure medications instead.
Diego started to suffer from seizures more often. It came to the point that he was having seizures every day. He was struggling with the physical and psychological impact of his current condition. He had no choice but to stop working.
We have been waiting for 14 months to see specialists in Princess Alexandra Hospital in Brisbane. That was in November 2016. The Neurosurgical team took over the case and acted immediately. According to them the surgery should have been done way earlier. Anyway we agreed on going ahead with the brain surgery which was performed on 24th January 2017. I have been waiting for Diego for about 6 hours in the waiting room.
When Diego woke up, I was very happy and relieved to have him by my side again. According to the doctors they could not remove all the tumor due to the risk of brain damage so then they were recommending Chemo/Radio treatment. Before proceeding with the next treatment we were told to wait for the pathology results to determine what would be the next best option.
The type of tumour found was an Anaplastic Oligodendroglioma Grade III.
Further treatment was now required. Radiotherapy and Chemotherapy has a low success rate of treating this type of tumour according to the studies however they recommended us to go ahead on this path.
I and Diego were advised by numerous specialists on this subject that Radio/Chemo is not an appropriate option in order to treat this type of brain tumour. We both started to research very deeply and wanted to know whether there is an alternative treatment available.
In mid-April Diego started a 6 week programme with an individualized IV treatment and its supplements in a specialized clinic for cancer patients in Varsity Lakes on the Gold Coast. The clinic also put us in contact with Dr Charles Teo one of the leading neurosurgeons in Australia and US.
We were lucky to see Dr Charles Teo on the 27th June 2017 in Prince of Wales Private Hospital in Sydney. He told us he can remove the whole tumour. Unfortunately we are not able to afford this procedure.
We do have private health cover but the cost of this life-saving surgery has out of pocket expenses in the tens of thousands which we do not have. This is why we have created this go-fund page to ask if you can help Diego in any way possible.
We would like to thank all of you who want to support Diego and his battle against the cancer.
Thank you so much for your support and giving Diego an opportunity of having a second chance.
Life is too precious to give it up.
- Pin WANG
- Holly Nicolas
- Alois Mitmannsgruber
- Jane Lee
- Mark Silburn