Help Declan Fight a Rare Brain Disease

My name is Kali, and I’m a mom on a mission to give my son the future he deserves.

At just two years old, Declan was diagnosed with an ultra rare brain disease—so rare, we’ve spent much time searching for answers. It affects every part of his development, communication and overall a very limited quality of life.

Declan is the sweetest little boy—full of love, strength, and curiosity. Even without many words, he has so much to say. He’s incredibly strong and resilient, and we believe with the right care, he can make incredible progress.

Now, for the first time, we have more hope.

A highly specialized clinic in Austin, Texas offers advanced care for children like Declan—those with rare neurological and genetic conditions. This isn’t just a one-time visit; it’s the beginning of a comprehensive, long-term journey toward answers and healing.

We’re praying to get his treatment scheduled by this summer. If we can even reach one-third of our fundraising goal, we can secure Declan’s spot in this life-changing program.

Getting Declan this treatment means:

- Working with experts who understand rare brain diseases

- Access to advanced testing and individualized therapies

- A customized long-term treatment plan

- Opportunities for clinical trials and ongoing care networks

- A chance to finally understand what’s happening inside his brain

This is our opportunity to open doors that have always been closed.

In addition to the clinic care, we’re also focused on providing in-home care treatment and equipment—tools that will help Declan at home with therapies, communication, and adaptive support to make progress every day.

As parents, we all want our kids to be healthy, to grow, and to thrive. We want to give Declan the best possible chance—and this clinic gives us that opportunity.

But this kind of care comes with a heavy financial burden. We’re asking for help to cover:

- Specialized Brain Treatment and Therapy

- Testing 

- Travel and lodging for regular visits to Texas - There 2 full weeks at first

- Specialized clinic fees and advanced genetic testing

- Adaptive tools and communication devices

- In-home care treatment and equipment

- Continued therapies and at-home support

If you can donate, share, or help spread the word, we thank you from the bottom of our hearts. Every act of support brings us one step closer to hope, healing, and a brighter future for Declan.

With love,

The Dearings

(https://www.neurosolutionatx.com)