We have some exciting news on the pump front! Lilly has been selected by JDRF (Juvenile Diabetes Research Foundation) to receive a free pump as part of the JDRF Government funded pump Program. She will be getting an older style pump which doesn’t include the consumables, but it is still an amazing start for her!
We are so thankful to everyone that has donated to Lilly! If you would like me to refund your donation please email me your bank details to [email redacted].au
If you don’t want your donation refunded and still want to donate to Lilly I would like everyone to know what your donations would be used for.
There are still some costs associated with getting her pump. Including consumables for her set changes ect.
We would also like to get her health insurance set up so that in 12months time we can get her a new style pump that has the automatic cutoff for when she is getting low to help avoid hypos.
In getting the new pump we will be able to have a spare pump in the case that her pump gets broken or damaged and needs to be sent away to be fixed. (I have been told this can take up to 6 weeks)
Any remaining money would then be donated to the JDRF via Lilly’s walk for Diabetes in November.
I will try and update via here or private message on her progress! Thankyou all again!
Lots of love
Let me tell you a little bit about us...
My name is Chelsea, and together with my husband, Todd we are raising three Beautiful Daughters. We have Lilly who is now 5 and twin babies Addison and Savannah who are 8 months old.
We are both working parents, Todd works as a Farm Hand and I am currently on Maternity leave from my job as a Finance assistant. We have never earnt much but it has always been enough to pay for our home and survive on.
We have both worked hard for all that we have but are now having to put our pride aside and seek help for our Beautiful little girl Lilly who was diagnosed with Type 1 Diabetes in September last year at the age of four.
We are asking for help to be able to get her an Insulin Pump.
Please continue reading to get some understanding on how much these two things could help improve our Little Girls quality of life.
What diabetes means to Lilly:
It means that Lilly has to check her BGL (Blood Glucose Levels) regularly throughout the day and is Insulin dependant and has to have 5-6 Insulin Injections per day. (That's over 2,200 needles per year.)
Lilly currently has a CGM (Continuous Glucose monitor) which is a small device inserted into her tummy which checks her BGL levels every 5 minutes, this device is painful when inserted but once it is in position it is literally a life saver!
Lilly is prone to having a large amount of Hypos (Low BGL) which can be very dangerous. Because she is still only newly diagnosed her levels are erratic, the desired levels are between 4-8. For example, Lilly can go from being 4 to 12 within the space of a morning, but then she can drop through the afternoon to below 3, especially if doing physical activities at school.
The CGM does come with some downfalls, one being that the information has to be sent to a device which has to be within 6 metres of her at all times, if the device (in Lilly's case, an old Iphone 4) is farther than 6 metres away from her it wont receive the information which can be very dangerous for Lilly if her levels drop.
The most important thing for us at the moment is that Lilly needs an Insulin Pump, these are Miracle Machines that constantly administer Insulin throughout the day via a catheter which is inserted just beneath the skin, having an Insulin Pump would mean that she does'nt have to have 5-6 Injections per day! Which this alone would make it life changing for her.
Insulin Pumps help to maintain and get better control over Blood Glucose Levels, the benefits of an Insulin Pump are endless, ranging from the accuracy of doses to being able to healthily exercise and engage in all activities. With the Insulin Pump costing $9,500 (Every 4 years) it would take us years of saving every spare cent to be able to afford to buy her one.
Thankyou for taking the time to read Lillys Story.
- Yemisi BE
- Mel Hettner
- Paull & Nic Coats
- Dimitria Dale
- Janine Martin
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