Medical Bills & Necessities

Help to support Katrina Hentkowski Setera and Brian Setera's baby who has Osteogenisis Imperfecta (OI), a rare brittle bone disease that results in frequent fractures.  So far Elizabeth has had over 20 fractures.  There is no cure for Osteogenesis Imperfecta. About half of the people who have Osteogenesis Imperfecta use mobility aids such as walkers, wheelchairs, crutches or canes. In addition to frequent fractures, symptoms may also include hearing loss, brittle teeth, short stature, skeletal deformities and respiratory difficulties. It is estimated that approximately 25,000 to 50,000 people in the United States have OI.

Elizabeth's parents are not getting any government or state aid assistance whatsoever. Their insurance only covers some of her medical expenses and they still have a lot of out of pocket expenses for their little girl.  Elizabeth's parents are being drained emotionally, physically, mentally and financially. Help us to support this little one so her parents can get her the care she so desperately needs. Elizabeth and her parents have a long road ahead of them and a donation of any amount would be much appreciated and it would be a huge help to Elizabeth and her family.  If you don't feel comfortable making an online donation, please feel free to private message me and I will give you Katrina and Brian's address.

Cards, E-mail's and letters of encouragement would be wonderful for the family as well.

Elizabeth's mother has a facebook page, if you would like to send her a message click the link below:

https://www.facebook.com/katrina.hentkowskisetera

If you're interested in reading more about Elizabeth's story, go to:

http://elizabethsunbreakablejourney.wordpress.com/












  • Anonymous 
    • $25 
    • 81 mos
  • Michele Stanczak-Brown 
    • $30 
    • 82 mos
  • Auntie Melanie 
    • $50 
    • 83 mos
  • Clair Hsu 
    • $50 
    • 83 mos
  • Candise Orazem 
    • $10 
    • 83 mos
See all

Organizer

MaryJane Gdyra Hentkowski 
Organizer
Sterling Heights, MI
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