Help SMA for Iranian Children

As you may know, we set up this account for an Iranian little girl with SMA, Delara, to buy the Zolgensma gene therapy she needed. In the meantime, we are happy to share that thanks to the Zolgensma lottery, Delara received the Zolgensma gene therapy for free.

 The news of our fund collection reached plenty of other families who have children with this terrible disease called SMA. We have been approached and currently 29 Iranian children are waiting for help, for whom we are the only link to the world! That’s why we decided, that from now on Delara’s account will be a joint account of 29 Iranian toddlers. A trust fund through which we hope we can raise enough money for Zolgensma gene therapy for all 29 children, providing a chance at a more beautiful and livable life. Your donations so far to Delara are already enriching the common fund of these children! Please continue to support them and share it with your friends and acquaintances that now, with our OFAC permission in our hands (with the permission of the world), Iranian children have a chance for recovery and for a better life.