Urgent Help with Theodore's Medical Care
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Hi there,
My name is Jon Mills & I am Theodore Mills's dad.
Please help us to urgently raise funds for specialist medical treatment for our 4 year old son who is suffering with agonising and debilitating eczema. Some recent photos are included below.
He has been diagnosed with an extreme form of eczema ( atopic dermatitis ) & sadly there is no known cure, with every case being different.
His eczema is all over his body, however it is at its worst on his face & neck.
It occurred out of the blue last September 2021 with no obvious triggers. Until this point he was completely eczema free and was very much looking forward to starting school in September 2022. However with his current health condition there is no way we will be able to send him to school.
My wife & I sadly need hold his hands ( and feet on occasion ) 24 hours a day to prevent him from scratching his skin. This has meant that he has slept in our bed with us since Nov 2021 and we keep a hold of his arms throughout the night, every night. He wakes up in extreme pain every hour or two due to his extremely sore skin drying up. This means he is getting little to no sleep which is also impacting his immune system.
We go through daily cycles of extremely dry cracked skin, which we need to apply his creams to on an hourly basis. This skin will then shed and expose raw red skin underneath. All his clothes need to be changed at least 3 times a day & we go through 4 pyjama changes every night. His / our bedding needs to be washed and dried every day at a very hot temperature.
We have had tried every ointment and emollient cream that has been prescribed, as well as alternatives but every single one was like acid on his skin.
He has had a battery of allergy tests / food tests, he has stopped all known obvious triggers. After months of trial & error we believe we have found a potential means of keeping his skin under control. This will involve a fairly lengthy process of treating him with thermal waters at the Avene Hydrotherapy Centre in France over the course of three weeks. These special waters help to reduce inflammation of the skin by keeping the bacteria Staphylococcus Aureus at bay. This bacteria is likely causing most of his issues, however after many many rounds of topical, oral & even intravenous ( IV ) antibiotics we have been unable to fight them off.
We have seen countless specialist private Dermatologists at numerous children's hospitals across the UK & France. We are also on the NHS waiting list to see NHS doctors. He has been previously hospitalised due to his condition which has bumped up his wait for the NHS Dermatologists, but the process is too slow, and the lack of sleep and pain has become too much for my son to handle
We are aiming to raise funds to get him the urgent treatment he needs as enough is enough. The NHS are fantastic at what they do but its a very slow process of trying different treatments.
The funds raised will pay for the treatment & all the different areas of support / associated care that he so urgently needs now.
Please note we have stretched target to cover costs for private & alternative treatments too.
My name is Jon Mills & I am Theodore Mills's dad.
Please help us to urgently raise funds for specialist medical treatment for our 4 year old son who is suffering with agonising and debilitating eczema. Some recent photos are included below.
He has been diagnosed with an extreme form of eczema ( atopic dermatitis ) & sadly there is no known cure, with every case being different.
His eczema is all over his body, however it is at its worst on his face & neck.
It occurred out of the blue last September 2021 with no obvious triggers. Until this point he was completely eczema free and was very much looking forward to starting school in September 2022. However with his current health condition there is no way we will be able to send him to school.
My wife & I sadly need hold his hands ( and feet on occasion ) 24 hours a day to prevent him from scratching his skin. This has meant that he has slept in our bed with us since Nov 2021 and we keep a hold of his arms throughout the night, every night. He wakes up in extreme pain every hour or two due to his extremely sore skin drying up. This means he is getting little to no sleep which is also impacting his immune system.
We go through daily cycles of extremely dry cracked skin, which we need to apply his creams to on an hourly basis. This skin will then shed and expose raw red skin underneath. All his clothes need to be changed at least 3 times a day & we go through 4 pyjama changes every night. His / our bedding needs to be washed and dried every day at a very hot temperature.
We have had tried every ointment and emollient cream that has been prescribed, as well as alternatives but every single one was like acid on his skin.
He has had a battery of allergy tests / food tests, he has stopped all known obvious triggers. After months of trial & error we believe we have found a potential means of keeping his skin under control. This will involve a fairly lengthy process of treating him with thermal waters at the Avene Hydrotherapy Centre in France over the course of three weeks. These special waters help to reduce inflammation of the skin by keeping the bacteria Staphylococcus Aureus at bay. This bacteria is likely causing most of his issues, however after many many rounds of topical, oral & even intravenous ( IV ) antibiotics we have been unable to fight them off.
We have seen countless specialist private Dermatologists at numerous children's hospitals across the UK & France. We are also on the NHS waiting list to see NHS doctors. He has been previously hospitalised due to his condition which has bumped up his wait for the NHS Dermatologists, but the process is too slow, and the lack of sleep and pain has become too much for my son to handle
We are aiming to raise funds to get him the urgent treatment he needs as enough is enough. The NHS are fantastic at what they do but its a very slow process of trying different treatments.
The funds raised will pay for the treatment & all the different areas of support / associated care that he so urgently needs now.
Please note we have stretched target to cover costs for private & alternative treatments too.
And below is Theodore from early 2021 as a happy, healthy little boy.
Organizer
Jonathan Mills
Organizer
England
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