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Help with the financial difficulties due to MS

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Hi, I’m Kayla. My husband and I got married April 28th 2018. We were in the middle of a custody battle for my step son , we hired a lawyer right away and after 10 months we finally won but unfortunately paying for the lawyer took all of our savings. Xavier (my husband), age 28, was diagnosed with MS back in December 2019 when he experienced excruciating back pain and numbness for more than half his body. We brought him to the hospital for testing and he was admitted for 5 days for very high steroid treatments. His MRI showed 39 lesions on his brain and a handful of lesions on his spine. Since he was diagnosed I've witnessed him have difficulties walking on his own, then difficulties walking with a cane and now difficulties walking with a walker. He never got any relief from his initial flare that caused us to bring him to the ER that day. For the first little bit I was able to get him to specialist appointments and physical therapy and I was able to get him in for his infusions for ms treatment. After about 6 months my employer of more than 15 years told me I was unable to take anymore time off to bring him to appointments or to bring my two young children to appointments. He missed numerous physical therapy appointments and specialist appointments and he missed his ms infusion. My husband is unable to bring himself to appointments anymore because he cannot drive anymore, due to numbness in his feet and legs and spasms he gets in his ankles and there is alot of transportation for him and the kids needed. I watched him deteriorate very rapidly once we stopped going to his appointments. I watched my kids worry and cry because they didnt understand what was wrong with their dad. Our daughter started sleeping with us after he was initially admitted into the hospital. She slept with us for almost a year after he came home. She was constantly worried and asking if daddy was going back to the hospital and asking if he was okay. How do you explain ms to a 4 year old? He first ended up using a cane and now uses a walker 95% of the time. After the last covid stimulus check i finally quit my job to be able to start bringing him to his appointments again. I have been able to get him a new MS doctor, a pcp and I have been able to get him into an eye specialist and a spine specialist to try to help some of the symptoms he has due to the MS. We have, on the minimum, 3 appointments a week he needs to get to. He can barley see anymore because his eyes shake so bad and they are very blurry, and the hope is that the spine specialist will be able to get him some relief for his back to make it a little easier to walk.His physical therapist has finally started seeing some small improvements but unfortunately I will have to return to work sooner rather than later and I will be unable to keep bringing him to appointments.

I have not qualified for unemployment as of yet and our funds are going quick. My husband does not know our financial situation because any sort of extra stress could cause him to have new lesions and go back into an active ms flare.

 

 

I am not acustom to asking for help but I am finally coming to the realization I cant do this alone. My little family needs help. I am asking if anyone could donate to help me stay out of work a little longer so that I can continue bringing my husband to his appointments and hopefully get him back to atleast walking with a cane instead of a walker.

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    Organizer and beneficiary

    Cynthia Woodall
    Organizer
    Portland, OR
    Kayla Frye
    Beneficiary

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