Support for Sundari - Stage 5 Kidney failure

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36 donors
0% complete

$3,980 raised of $50K

Support for Sundari - Stage 5 Kidney failure

Hello friends. This fundraiser on behalf of a very sweet and wonderful friend, Sundari. She has already been through too way much extra hardship this year and has just worked so hard to keep herself going gracefully and has never stopped helping others along her journey. Recently she has found herself faced with a pretty sudden diagnosis of stage 5 kidney failure. She is not the "ask for help" type of person and just gives so much. It is time for her to see the help that she deserves. Community please, donate what you can and share this on all of your platforms! 
 
Stage 5 kidney failure comes with many scary, complicated and expensive modifications to life. Some of these things will be covered by insurance and many will not. She will continue to work when she can, as she has a beautiful integrity and crafts some amazing goods.. but trying to keep up on rent and bills the same way with this diagnosis is not even sustainable or even possible, it's too much to think about doing alone by far. It's already hard enough making it in this world  The structure of her life is being shifted hard, and any little amount donated, even any share of this, shows her someone cares to make a complicated diagnosis and life change much easier. We need to keep her safe and warm and well nourished. Time to ease some of the financial worries however we can. 
 
Some things she has shared recently :
 
"So I guess it's time to share with everyone what I've been going through because I'm going to need an insane amount of support to get through this. I am officially in Stage 5 Kidney Failure. I am preparing for dialysis and have my first appointment with the transplant team in January. This is a huge surprise and completely blindsided me. With loosing the farm, my independence and my marriage this year I didn't think I could handle anything else. But bad news doesn't wait for you to be in a good spot. So 2021 literally almost destroyed me, so if I've been a little absent in your life this year that is why. I can barely be here for myself right now much less anyone else. I'm nervous for the future and I'm sad to think my life will not only be cut short by this disease but my quality of life will go way down. (It already has) I am doing everything I can to keep my body healthy for a transplant. I'm going in for my graft surgery on the 20th. This is the port they will use for dialysis. I've never been put under before and honestly a little scared about it. My life will never be the same after this. I'm just really really sad about it all. And extremely exhausted... All the time. And forgetful. So if you've reached out to me and not heard back. It's the disease and not me. Please be patient with me. Reach out again. Cause I need you all my dear sweet friends."
 
"Hey everyone. Thank you so much for all the love and support. I just wanted to throw out some facts and info about what I'm going through so I don't have to have this conversation a bunch of times. My gfr is at 15. That pretty much is the percentage my kidneys are functioning at. I have one normal kidney and baby kidney that isn't where it's supposed to be. My gfr was 19 two months ago so it seems it's on a rapid decline and that is why I'm getting ready for dialysis. They usually put you on dialysis between 5 and 13%. I have chosen to do dialysis at home. I have a month long classes to prepare me. The surgery is to get the port put in for the dialysis hook up. My veins are too tiny so they are grafting it instead and there is possible more complications doing it that way (total numbing of the arm and hand) but the surgeon thinks it's our best route."...
..." My kidney failure has been a slow progression and I just didn't know because I haven't had health insurance for the last 15 years so never got checked out. It could have been caused by un checked high blood pressure, chronic UTI and kidney infections or hereditary. It's been happening for many many years I guess. I have a pretty strict diet now of low sodium, low potassium, low phosphorus and low protein. It's quite annoying to have so many eating restrictions. "
 
This is truly an exhausting obstacle course of medical changes for her coming up.  She was planning some warmth at a beach to help her mental health as this all hit, and when her Dr clears her for it, ideally she will be able to still do that, she cared very much for the transparency in this and felt unsure, but we want the rest of Sundari's life to be happy, safe and comfortable. We want for her to not worry when she needs rest, healthy food and love. Dialysis takes time and work and a lot of stress to adjust to. Your help will ensure less of that scared-paycheck to paycheck feeling during a long term- dramatically life altering diagnosis and help with any of the many uncovered related expenses to keeping Sundari healthy and stable. We must keep this one smiling.  

With this diagnosis there are many things to learn and do when you are at your most tired. She has a positive attitude and so does her surgeon. She is so young and has so much mental resilience, I truly believe that will help her as well. The wait list for a donor kidney is typically around 4 years if there isn't a match from a live donor sooner.


All of your support is so meaningful, I cannot stand the idea of anything getting harder for her right now, or ever along this journey (seriously this year was sour times already for her, putting stage 5 kidney failure on top of anything is way too much to walk with alone. Lets try to end it on a note of community love and support for her health and happiness.
Thank you!!!)
 
WE LOVE YOU SUNDARI
 
 

Organizer and beneficiary

Jenessa Danger
Organizer
Portland, OR
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