Help with Ray's PICU Medical Costs

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$1,990 raised of 

Help with Ray's PICU Medical Costs

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It’s with a heavy heart that I reach out for support. We need assistance with Ray's medical bill from his 8-week stay in the PICU before his passing.

As many of you know, our precious baby boy Raymond was born on June 20, 2025, and sadly passed away on August 15, 2025, due to an ultra-rare genetic disorder known as Barth Syndrome, which was complicated by dilated cardiomyopathy and a previous NEC infection. His medical expenses continue to rise, and any help you can provide would mean the world to us. I am actively working with insurance to try to reduce some of the costs.

Organizer

Elizabeth Lang
Organizer
Hahnville, LA
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