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Hello family and friends, my name is Yvette Muters and I am creating this GoFundMe page to help with extensive medical expenses recently incurred for my niece Mia Muters.
Mia was taken to the ER on Sunday December 12th after not feeling well for several days. She had high blood pressure, nausea, abdominal pain, anxiety and had not been able to eat or sleep for 3 days. Initially the physicians felt that Mia was experiencing heart complications after recovering from a Covid infection a few weeks earlier. (Many have asked if she was vaccinated and YES, she was vaccinated) On Monday December 13th Mia had two Grand Mal Seizures indicating that something else was definitely wrong. She was sent by ambulance to the University of Iowa Children's Hospital and placed in the Pediatric Intensive Care Unit.
After many tests, CT scans and an MRI it has been determined that Mia is experiencing a Tyrosinemia Crisis. For those of you unfamiliar with this condition, Tyrosinemia type 1 is a genetic disorder characterized by elevated blood levels of the amino acid tyrosine, a building block of most proteins. This condition is caused by a shortage of the enzyme fumarylacetoacetate hydrolase, one of the enzymes required for the multi-step process that breaks down tyrosine. Tyrosinemia type 1 is an autosomal recessive disorder with an estimated birth rate of 1 in 100,000 to 1 in 120,000 worldwide. Mia's sister Isabella was also born with this disorder and passed away at 9 1/2 months old because the doctors didn't know she had it. Isabella's death led to a very early diagnosis for Mia and is the reason the state of Iowa now screens infants at birth for this genetic disorder. It is treatable.
Mia is a beautiful 14-year-old girl! This is the first time she has experienced this type of crisis with her disorder. It had caused many things to happen throughout her body. Mia had a brain MRI yesterday that showed something called posterior reversible encephalopathy syndrome (PRES). This was triggered by hypertension and has caused an altered mental state for Mia including sporadic bouts of confusion, not knowing her own name or the names of her parents. This morning the latest abdominal ultrasound shows pancreatitis. Mia has a long road to recovery but fortunately these things are reversible! Medications are working and she was less confused last night and had her first full night of sleep in a week. Her anti-seizure medications are working, and she hasn't had one since Monday. Her medication and supplements used to treat her Tyrosinemia are being adjusted. She is in the right place with amazing doctors who are leaving no stone unturned.
You can imagine that there will be many medical bills coming soon for Mia's care. So many of you have asked how you can help, so I felt called to put this opportunity for financial assistance out there. If you are able, would you consider donating to help pay for Mia's care, travel expenses, loss of income for her parents and all the unknown expenses yet to come? On behalf of all of Mia's family we thank you for your prayers and continued support! I know Scott and Jessy (Mia's parents) are so grateful for each and every one of you that have reached out offering to help!
Organizer and beneficiary
Scott Muters
Beneficiary

