Help with Healing Magnus
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I am running this campaign to assist in the healing of a young friend. We are family friends from the same church and have known this young man since his birth.
Magnus-Storm Binns is a 15-year old young man in training. As his name suggests, he is a fighter. Magnus-Storm has experienced many health challenges throughout his life. Currently, he just underwent a procedure for Scoliosis that has given him great healing from continual pain. He will also have to undergo seasonal maintenance visits in the coming year.
The financial burden on his family has been high and they cannot overcome this last one alone. There are three ways you can choose to help. Any or all of these would be greatly appreciated.
1. Make a donation.
2. Help us share this message on Facebook.
3. Pray for his healing.
A letter from his mother:
Magnus-Storm was born with a very rare condition called Sturge-Webber Syndrome. It is a Neurological disorder that is often associated with a port wine stain on the face that covers one eye and goes up into the scalp. When he was a baby we would fondly refer to it as his Storm Cloud because it would become bright red when he cried. SWS, as it is called, also manifests through seizures that usually begin at a very early age. Magnus-Storm’s seizures began at six months. He was in and out of the hospital many times as his seizures came often – sometimes two to three times in a month.
At three years old, Magnus had a major seizure which resulted in hemiparesis (weakness on one side of the body) for nearly six months. After he recovered, we noticed his seizure activity subsided to only a few times a year and then from there to once every few years but his seizures changed, as well. His seizures became much more intense when they did come and they were more and more difficult to diagnose and control once they started. His seizures mimic a Transient Ischemic Attack or a TIA, which is a mini-stroke. Because there are no typical outward signs of his seizures any more, most doctors, even with EEGs and other tests, cannot tell if he is actually having a seizure or a TIA. Unfortunately, the only way they can be certain he is having a seizure is with a 24 hour EEG because his activity is so deep in the brain.
In 2014, Magnus-Storm had a massive seizure which went uncontrolled for nearly four days. When medication failed to stop his seizures, the doctors suggested inducing a coma which in layman’s terms is like hitting the reset button for the brain. He eventually came out of the seizure without completely going into a coma and was on a ventilator for 24 hours. As a result of the extended seizure, a major learning deficit was identified. Magnus was in the Seventh grade and regressed to a third grade reading level. Magnus-Storm was also diagnosed with Contact Dermatitis at an early age and only a few years ago we found out he has Autism, as well.
In 2015, Magnus was diagnosed with Scoliosis. We immediately began seeing a Chiropractor and he began swimming two to three times a week; both of which, we were told, can help with his condition. In November, Magnus broke his toe while learning to dive and ended up needing surgery on the growth plate of his big toe. Within two weeks of the surgery, Magnus had another Seizure that went on for a few days.
Over the course of the next year, Magnus worked hard and regained much of what he lost in reading and is now at grade level. Over the course of that same year, Magnus’ scoliosis had progressed significantly; he went from a 34 degree curve to a 63 degree spinal curve. We found that he was in pain literally all the time because of the significant curve. We saw an Orthopedist and he told us that Magnus’ only option was surgery – an incredibly invasive procedure where rods would be placed in his back to force the curve of the spine into a natural position. Not only could the procedure lower his threshold and put him at risk for another seizure, he would be at risk for infection and would also miss two months of school and possibly lose the progress he made. We decided surgery would have to be the last possible option. We decided to seek out alternative therapies for scoliosis and came across the Scoliosis Correction Center in Winsted, Connecticut run by Dr. Daniel Hersh, who has been helping people with Scoliosis for over 34 years.
In a nut shell the following is what they do:
- “The work we are doing at the CLEAR Scoliosis Institute, with non-surgical scoliosis correction is based on several important facts. Scoliosis is not just a crooked spine, but involves abnormal spinal curves in the neck, as well as hip and vertebral rotation. Active scoliosis patients frequently present with forward head posture and loss of cervical lordosis (seen on x-ray), together with pelvic rotation and loss of the lumbar normal lordosis (as seen on x ray). The lateral scoliotic curvature must be simultaneously treated and corrected along with the cervical and lumbar lordosis in the sagittal plane. Pelvic rotation, if present must also be addressed. These results are achieved with a combination of specific spinal adjustments done with instruments, specific rehabilitative procedures, including proprioceptive neuromuscular re-education, muscle and ligament rehab and vibration therapy. The scoliotic spine compresses and rotates three dimensionally; therefore it must be de-rotated, and decompressed in order to correct. We use, among other things, vibration platforms and a vibration scoliosis traction chair as well as specific bracing to pull the Cobb angle back into proper alignment.” –
After the first day of treatment, we were surprised and elated to find that Magnus said he was not experiencing back pain (for the first time in over a year). Magnus is a soldier when it comes to working toward recovery. Despite the numerous mountains before him he only sees opportunities with minor obstacles in his path. He doesn’t complain; he doesn’t get discouraged. He has an infectious smile and he is a walking inspiration to many.
FEES
- $500.00 deposit
- Initial Examination: $450
- Specialized Scoliosis Radiographs: $400
- Intensive Care Treatment: $6950
- Scoliosis Traction Chair $3995 - (Prescribed because the curve of his spine is over 60 degrees)
- Follow-up care – Every 3 months.
Magnus-Storm Binns is a 15-year old young man in training. As his name suggests, he is a fighter. Magnus-Storm has experienced many health challenges throughout his life. Currently, he just underwent a procedure for Scoliosis that has given him great healing from continual pain. He will also have to undergo seasonal maintenance visits in the coming year.
The financial burden on his family has been high and they cannot overcome this last one alone. There are three ways you can choose to help. Any or all of these would be greatly appreciated.
1. Make a donation.
2. Help us share this message on Facebook.
3. Pray for his healing.
A letter from his mother:
Magnus-Storm was born with a very rare condition called Sturge-Webber Syndrome. It is a Neurological disorder that is often associated with a port wine stain on the face that covers one eye and goes up into the scalp. When he was a baby we would fondly refer to it as his Storm Cloud because it would become bright red when he cried. SWS, as it is called, also manifests through seizures that usually begin at a very early age. Magnus-Storm’s seizures began at six months. He was in and out of the hospital many times as his seizures came often – sometimes two to three times in a month.
At three years old, Magnus had a major seizure which resulted in hemiparesis (weakness on one side of the body) for nearly six months. After he recovered, we noticed his seizure activity subsided to only a few times a year and then from there to once every few years but his seizures changed, as well. His seizures became much more intense when they did come and they were more and more difficult to diagnose and control once they started. His seizures mimic a Transient Ischemic Attack or a TIA, which is a mini-stroke. Because there are no typical outward signs of his seizures any more, most doctors, even with EEGs and other tests, cannot tell if he is actually having a seizure or a TIA. Unfortunately, the only way they can be certain he is having a seizure is with a 24 hour EEG because his activity is so deep in the brain.
In 2014, Magnus-Storm had a massive seizure which went uncontrolled for nearly four days. When medication failed to stop his seizures, the doctors suggested inducing a coma which in layman’s terms is like hitting the reset button for the brain. He eventually came out of the seizure without completely going into a coma and was on a ventilator for 24 hours. As a result of the extended seizure, a major learning deficit was identified. Magnus was in the Seventh grade and regressed to a third grade reading level. Magnus-Storm was also diagnosed with Contact Dermatitis at an early age and only a few years ago we found out he has Autism, as well.
In 2015, Magnus was diagnosed with Scoliosis. We immediately began seeing a Chiropractor and he began swimming two to three times a week; both of which, we were told, can help with his condition. In November, Magnus broke his toe while learning to dive and ended up needing surgery on the growth plate of his big toe. Within two weeks of the surgery, Magnus had another Seizure that went on for a few days.
Over the course of the next year, Magnus worked hard and regained much of what he lost in reading and is now at grade level. Over the course of that same year, Magnus’ scoliosis had progressed significantly; he went from a 34 degree curve to a 63 degree spinal curve. We found that he was in pain literally all the time because of the significant curve. We saw an Orthopedist and he told us that Magnus’ only option was surgery – an incredibly invasive procedure where rods would be placed in his back to force the curve of the spine into a natural position. Not only could the procedure lower his threshold and put him at risk for another seizure, he would be at risk for infection and would also miss two months of school and possibly lose the progress he made. We decided surgery would have to be the last possible option. We decided to seek out alternative therapies for scoliosis and came across the Scoliosis Correction Center in Winsted, Connecticut run by Dr. Daniel Hersh, who has been helping people with Scoliosis for over 34 years.
In a nut shell the following is what they do:
- “The work we are doing at the CLEAR Scoliosis Institute, with non-surgical scoliosis correction is based on several important facts. Scoliosis is not just a crooked spine, but involves abnormal spinal curves in the neck, as well as hip and vertebral rotation. Active scoliosis patients frequently present with forward head posture and loss of cervical lordosis (seen on x-ray), together with pelvic rotation and loss of the lumbar normal lordosis (as seen on x ray). The lateral scoliotic curvature must be simultaneously treated and corrected along with the cervical and lumbar lordosis in the sagittal plane. Pelvic rotation, if present must also be addressed. These results are achieved with a combination of specific spinal adjustments done with instruments, specific rehabilitative procedures, including proprioceptive neuromuscular re-education, muscle and ligament rehab and vibration therapy. The scoliotic spine compresses and rotates three dimensionally; therefore it must be de-rotated, and decompressed in order to correct. We use, among other things, vibration platforms and a vibration scoliosis traction chair as well as specific bracing to pull the Cobb angle back into proper alignment.” –
After the first day of treatment, we were surprised and elated to find that Magnus said he was not experiencing back pain (for the first time in over a year). Magnus is a soldier when it comes to working toward recovery. Despite the numerous mountains before him he only sees opportunities with minor obstacles in his path. He doesn’t complain; he doesn’t get discouraged. He has an infectious smile and he is a walking inspiration to many.
FEES
- $500.00 deposit
- Initial Examination: $450
- Specialized Scoliosis Radiographs: $400
- Intensive Care Treatment: $6950
- Scoliosis Traction Chair $3995 - (Prescribed because the curve of his spine is over 60 degrees)
- Follow-up care – Every 3 months.
Organizer and beneficiary
Harry Tulier
Organizer
Rocky Hill, CT
Richard Binns
Beneficiary