Help with Food, Housing, and Bills
Donation protected
Hi everyone! this is for our baby Felix Scott Snapp
We are so grateful and excited for the arrival of our baby boy Felix. As much as we can’t wait, we can’t help but be stressed due to having to be off of work while we care for Felix. At our 20 week anatomy scan, we discovered that Felix has CDH of the left side, (congenital diaphragmatic hernia) and for those with out a doctor degree, this essentially means that Felix’s diaphragm never fully developed, resulting in a hole. This hernia allows his organs from his abdomen to push up into the chest due to the pressure levels being higher. Now with that being said, it shifts everything and makes it very cramped and doesn’t give much room for those little lungs to develop. Currently, his stomach, bowel, and spleen are in his chest, his current total fetal lung volume is 40% (placing us in the moderate category). We learned that he also has a mass on one of his lungs, this mass causes his lung to inflate. This being said, this lung could continue to inflate and get bigger and bigger and cause more issues, of course we won’t know exactly what will happen until he is born, he will most likely need another surgery (other than to repair the CDH, to take out his frontal lobe of his lung) he could possible also need to be placed on ECHMO. There is also worry of how he will handle pulmonary hypertension(this is the doctors second main concern)also pulmonary hypoplasia, because the abdominal contents are in the chest the lungs do not have the appropriate space to grow and are smaller than they should be. Long story short, our boy is a fighter, but will be in the NICU/PICU for quite a long time, we will be having all of this done (birth and all) in Madison Wisconsin- which is about a 2 hour drive from home. I will be having a scheduled c-section (dated for 2/14/2024) but of course he could always come earlier. I will be off work during this time (for however long- could be 6-8 weeks could be 6-8 months) and Isaiah will be taking time off of work. Now I know life is really expensive, and we’re going to be living off of one income for a long time, anything would be appreciated- we will be using this money to go towards bills, food, etc. I will also be reaching out/working with a social worker and care coordination through Meriter Hospital to see if we could get some assistance through them as well.
Sorry for such a long story, it’s a very difficult diagnosis and all we want to worry about is being there with Felix and be with him on his journey to recovery, but again everything in life costs money.
thank you so much for anyone who donates or even shares, we appreciate it more than you’d ever know.
02/03/24 update: Felix was placed on Ecmo on the 26th of January, he has been stable. on the 29th he had his surgery to repair the hernia and did amazing! so far he has been stable, we are currently trying to wean him off of ecmo to be on the ventilator only, they are working with him to get his lungs to open and stay open (they had collapsed due to being on ecmo) we still have quite a journey ahead of us but we are so proud of our little fighter. Thank you to everyone who has shared and donated
2/06/24 Update:
We just wanted to put an update, Felix came off of ecmo today!! (yay!) but unfortunately on sunday (the 4th) he was placed on dialysis since his kidneys had stopped working. he is continuing on dialysis still. from that stand point he is doing great! unfortunately during his CDH repair surgery a line was missed (his drainage tube that was placed to get his stomach acid out) and is now stitched in between his esophagus and his stomach. tomorrow the plan is for Felix to go back in for another surgery to fix this. We have had a lot of delays and just want to see our baby doing and feeling better! we will continue to update as new events progress. thank you all again for all of the help, it is so appreciated and we could never thank everyone enough.
02/15 Update:
Little man has had a rough couple of days, he is still on dialysis and struggling with low blood pressure as well as an infection from somewhere unknown. They currently have him on a widespread of antibiotics along with medicines to bring his blood pressure up. the game plan as of right now is to get his pressures stable and get that infection under control. We will continue to update as more progresses, but we are just hoping he gets stable soon so we can work more to try and get his kidneys to wake up! thank you all again!!
3/6 Update:
We are still trucking along!! he’s been having a good past few days!! he started to finally make some urine!! we are still on dialysis and will continue to be until Felix is cleared from renal failure, but this is a step in the right direction, we are so proud of our little man! we’re working towards hopefully in the next two weeks that we will be able to extubate him and put him on forced air (the nose cannula) we’ve been on and off on feeds due to him throwing up so the plan for that is on friday they will take him down to interventional radiology to try and place a feeding tube that will go past his stomach into his small bowel so that way he will get feeds with the hope of him not throwing up, they have tried this before but due to his anatomy with CDH it was hard for them to place it correctly, so fingers crossed were successful on friday! not a huge update but little man has been doing so good! we’re so proud of him! thank you all so much again! All of us appreciate it (even felix). it’s been so great to watch our beautiful boy grow and even though we still have a long time before we’re home, we appreciate the help in order for me to be able to be up here with him at this time!
Thank you from our family: Isaiah Snapp, Susan Herzog, Shawna Snapp, Jason Snapp, Kaitlyn Henson, ETC.
We are so grateful and excited for the arrival of our baby boy Felix. As much as we can’t wait, we can’t help but be stressed due to having to be off of work while we care for Felix. At our 20 week anatomy scan, we discovered that Felix has CDH of the left side, (congenital diaphragmatic hernia) and for those with out a doctor degree, this essentially means that Felix’s diaphragm never fully developed, resulting in a hole. This hernia allows his organs from his abdomen to push up into the chest due to the pressure levels being higher. Now with that being said, it shifts everything and makes it very cramped and doesn’t give much room for those little lungs to develop. Currently, his stomach, bowel, and spleen are in his chest, his current total fetal lung volume is 40% (placing us in the moderate category). We learned that he also has a mass on one of his lungs, this mass causes his lung to inflate. This being said, this lung could continue to inflate and get bigger and bigger and cause more issues, of course we won’t know exactly what will happen until he is born, he will most likely need another surgery (other than to repair the CDH, to take out his frontal lobe of his lung) he could possible also need to be placed on ECHMO. There is also worry of how he will handle pulmonary hypertension(this is the doctors second main concern)also pulmonary hypoplasia, because the abdominal contents are in the chest the lungs do not have the appropriate space to grow and are smaller than they should be. Long story short, our boy is a fighter, but will be in the NICU/PICU for quite a long time, we will be having all of this done (birth and all) in Madison Wisconsin- which is about a 2 hour drive from home. I will be having a scheduled c-section (dated for 2/14/2024) but of course he could always come earlier. I will be off work during this time (for however long- could be 6-8 weeks could be 6-8 months) and Isaiah will be taking time off of work. Now I know life is really expensive, and we’re going to be living off of one income for a long time, anything would be appreciated- we will be using this money to go towards bills, food, etc. I will also be reaching out/working with a social worker and care coordination through Meriter Hospital to see if we could get some assistance through them as well.
Sorry for such a long story, it’s a very difficult diagnosis and all we want to worry about is being there with Felix and be with him on his journey to recovery, but again everything in life costs money.
thank you so much for anyone who donates or even shares, we appreciate it more than you’d ever know.
02/03/24 update: Felix was placed on Ecmo on the 26th of January, he has been stable. on the 29th he had his surgery to repair the hernia and did amazing! so far he has been stable, we are currently trying to wean him off of ecmo to be on the ventilator only, they are working with him to get his lungs to open and stay open (they had collapsed due to being on ecmo) we still have quite a journey ahead of us but we are so proud of our little fighter. Thank you to everyone who has shared and donated
2/06/24 Update:
We just wanted to put an update, Felix came off of ecmo today!! (yay!) but unfortunately on sunday (the 4th) he was placed on dialysis since his kidneys had stopped working. he is continuing on dialysis still. from that stand point he is doing great! unfortunately during his CDH repair surgery a line was missed (his drainage tube that was placed to get his stomach acid out) and is now stitched in between his esophagus and his stomach. tomorrow the plan is for Felix to go back in for another surgery to fix this. We have had a lot of delays and just want to see our baby doing and feeling better! we will continue to update as new events progress. thank you all again for all of the help, it is so appreciated and we could never thank everyone enough.
02/15 Update:
Little man has had a rough couple of days, he is still on dialysis and struggling with low blood pressure as well as an infection from somewhere unknown. They currently have him on a widespread of antibiotics along with medicines to bring his blood pressure up. the game plan as of right now is to get his pressures stable and get that infection under control. We will continue to update as more progresses, but we are just hoping he gets stable soon so we can work more to try and get his kidneys to wake up! thank you all again!!
3/6 Update:
We are still trucking along!! he’s been having a good past few days!! he started to finally make some urine!! we are still on dialysis and will continue to be until Felix is cleared from renal failure, but this is a step in the right direction, we are so proud of our little man! we’re working towards hopefully in the next two weeks that we will be able to extubate him and put him on forced air (the nose cannula) we’ve been on and off on feeds due to him throwing up so the plan for that is on friday they will take him down to interventional radiology to try and place a feeding tube that will go past his stomach into his small bowel so that way he will get feeds with the hope of him not throwing up, they have tried this before but due to his anatomy with CDH it was hard for them to place it correctly, so fingers crossed were successful on friday! not a huge update but little man has been doing so good! we’re so proud of him! thank you all so much again! All of us appreciate it (even felix). it’s been so great to watch our beautiful boy grow and even though we still have a long time before we’re home, we appreciate the help in order for me to be able to be up here with him at this time!
Thank you from our family: Isaiah Snapp, Susan Herzog, Shawna Snapp, Jason Snapp, Kaitlyn Henson, ETC.
Organiser
sara herzog
Organiser
Ashton, IL