Help with Dylan's Medical Costs

This is Dylan and her beautiful Mom and 5 siblings. Dylan is 13 years old and one of the strongest, most courageous kids ever. Dylan was born with Goltz Syndrome (Focal Dermal Hypoplasia), glaucoma and bladder extrophy.  Goltz Syndrome is a rare genetic condition that involves the skin, skeletal system, eyes and face. It causes the hair, teeth, nails and glands to function and develop abnormally. At birth, the skin is very thin with nodules of fat under the skin. These skin changes cause a lot of pain, irritation and skin infections.  Goltz Syndrome also causes papilloma's to develop around many parts of the face and body. Dylan has had many surgeries to remove papilloma's from her lips, nose and esophagus. She has undergone tear duct clear out, explorations then reconstruction.  This symdrome also is the cause of hand and foot abnormalities. Dylan has had to undergo surgery to remove one of her toes and has had procedures to release toes that are curled. 
Dylan was diagnosed as blind and deaf by her 1st birthday. She spent 7 months with an NG tube to help with nutrition due to her extremely high palate. She was hospitalized several times due to failure to thrive. Despite the bleak outcome from the doctors, Dylan has overcome so many obstacles and beat all the odds she was given. She uses braille and loves to sing. 
Dylan will undergo her 17th surgery in the next little while. There is a large mass on her lower right jaw that needs to be removed. She will then have reconstructive surgery which will require several follow-up dental procedures as she does not have teeth there and the doctors will be attempting to implant dentures. She will need to undergo several tests to ensure there are no further masses that have formed in her brain or heart related to the one in her jaw. 
Although we do live in Canada, some procedures and tests are not covered and have to be paid out of pocket. One test recently cost the family over $300! 
Dylan has 3 sisters and 2 brothers. Dylan's mom, Aneesha, is such an inspiration to so many and does everything she can for all of her children. Aneesha will need to stay in hospital with Dylan and leave her other 5 children with extended family. They are unsure of how long Dylan will need to stay at Sick Kids and Aneesha is unable to work right now due to the I going medical needs of Dylan. As we all know, COVID has made things that much more difficult also. 
This family has fought so many battles and this little girl has overcome so many obstacles in her short life. The financial costs related to staying at the hospital and having 5 children at home is weighing heavily on the minds of their family and friends. Anything that you can do to help this single, amazing mom of 6 and help take some of the financial burden off Aneesha during an already highly stressful time, would be extremely appreciated! Aneesha does not ask for help from anyone, yet wheres her heart on her sleeve and helps anyone she can. This family needs a break and anything is greatly appreciated! 
Thank you in advance!


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Amanda Wallace-Gallant 
Oshawa, ON
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