Help with costs of hospital life for Ellie & her family

Hi everyone! Im Kim, Ellies Mummy. Firstly, thank you if your taking the time to hear our story!

Our Ellie baby was born early at 34weeks due to me having a placental rupture. We both nearly died, Ellie was born unresponsive and it took 21minutes for doctors to bring her back and get her intubated. This left Ellie with severe H.I.E ( hypoxic-ischemic encephalopathy ) This is a brain injury from the lack of oxygen and blood to her little brain.

She's stage 3 and it's severe damage, it's resulted in Ellie being severly disabled and medically complex.

She has drug resistant uncontrollable epilepsy, dyatonia, fully NG tube fed/unsafe swallow, not mobile and global developmental delay.

She's in and out of hospital so much with chest infections or seizures, our local hospital nurses are like family to us.

Life as a result of all of this happening has been really tough, the longest Ellie has ever been home for is just 18 days. This has took a toll on everyone, we can't work until we have carers in place to help with Ellie as she needs 2-1 care and my children have become young carers.

My older children are 10 and 11 and there beyond amazing, they help were they can and cope so well during stressful times like when we have paramedics in the house almost weekly! It's really tough on them, I wish they didn't have to deal with so much weight on their shoulders... but I'm so so beyond proud of them.

Were trying to raise money to help with life right now. Ellie is in Alderhey hospital to get treatment because her latest EEG showed she was having constant seizures, even in her sleep. While shes there she will likely also be having surgery for a peg feeding tube. Were looking at being there for quite a while. This hospital is a decent drive away for us and the cost's really add up when your going back and forth from hospital multiple times a day. You don't realise how expensive hospital life is until you live it...

Petrol - the biggest of money drainers

Car repairs - we do that many miles now we constantly need new tyres and repairs

Food & drinks - we have fussy kids ‍and packed lunchest won't cut it and frankly I don't have the time with life right now we end up eating out alot to save time and energy, I'm physically and mentally exhausted.

Entertaining the older kids - we barely get days were we can do family things.. so when we get the chance we try to take, it but things are just so expensive these days

Medical equipment for Ellie - there's so many things Ellie would benefit from to help her physically but you can't get it all through the NHS and charity's are struggling right now it's super hard to get funding.

If all goes well we would LOVE to take Ellie to the NAPA center in London too which is an intensive therapy course that could help Ellie massively!

If you've come this far, your amazing thank you!

If you choose to help a family out that had a really tough past 15months.. then your appreciated so so much and we love you for it!