August, we started to notice changes in Wendie - Lou, she had unexplained lumps and bumps over her body, mottled skin changes, more restless and changes to feeding pattern..
End September, Wendie Lou was progressive getting worse day by day, on the 24th September our whole world fell apart
all over again. Wendie Lou was diagnosed with Acute Myeloid leukaemia.
She is currently being treated at Birmingham Childrens Hospital, Wendie-Lou was enrolled into the myechild 01 protocol which is a first line therapy while we were waiting for her Genetic tests to come back.
On the 28th November, we finally had Wendie-Lou’s Genetic profile back, which unfortunately again shows unfavourable genetics.
Wendie Lou’s genetics came back which shown Unfavourable genetics. Wendie lou has a mutation in the Flt3 gene, because of this we are having to explore treatments options privately and abroad as the NHS is limited.
She is being discussed in the global MDT meeting.
We are desperately asking for donations because Wendie Lou has a treatment option that is in America, this is Car T cell therapy which has a high success rate followed by a cord transplant, this comes at a price we have had an email stated Wendie Lou wouldn’t be able to start on the trial without down payment of around £500,000.

Most importantly it will hopefully be used to give her the best chance of CURE!! This is life and death with our little girl!
Wendie Lou is a fighter and this is a battle we are not loosing this time! Please share Wendie Lou’s story far and wide!
You can follow Wendie Lou’s journey on her Instagram page, we need all the love and support we can get!
@wendie.lou_leukemia
#wendiewins

Organizer
Terri Smith
Organizer
England