In January, my insurance company stopped covering the weekly infusions they had approved for the past 2.5 years—the treatment that kept my autoimmune diseases (Sjögren’s, Lupus, and Rheumatoid Arthritis), POTS, chronic nerve pain, back pain, and mental health under control.
Those infusions weren’t just another treatment—they stabilized my immune system, reduced inflammation, regulated my nervous system, and dramatically reduced my pain—without opiates. For the first time in years, I could think clearly, function, and feel like I had pieces of my life back.
Then, almost overnight, coverage was denied.
Now I’m back on opiates—the very thing I fought for years to avoid—and I can feel my progress slipping away.
My health crisis began in March 2020, when I became septic from necrotic tissue at the base of my spine and was rushed into emergency surgery. Eleven more surgeries followed, along with two years living with a colostomy bag. I was eventually diagnosed with three autoimmune diseases and POTS. I’ve lost nerve function in my hands, feet, arms, and legs. I have trouble walking and now rely on a cane. Chronic pain is my daily reality.
After years of setbacks, these infusions were the first treatment that truly worked.
They cost $1,000 a month toward my deductible and were fully covered after that. Without insurance, they now cost $3,600–$5,400 per month—more than we can manage alone.
Without this treatment, my condition will worsen, and my reliance on opiates will increase. I’m asking for your help to continue the therapy that gave me stability, clarity, and relief.
If you can donate or share, it truly means everything. Thank you for standing with us.
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