im trying to help my sister virginia and her friend jacey reunite. it's been 4 years since they last seen each other and it's difficult for jacey to travel and for us to get to michigan due to everyday life expenses it's about an 18 hour long drive to get there. so im looking to raise about $2,000 which may be a high estimate, but i want to make sure that we have enough to get her there... virginia and jacey both have a terminal illness called juvenile huntingtons disease it's a neurological brain disorder and it's like having als, parkinson's, bipolar, and schizophrenia all rolled into one and currently there is no known cure or treatment to stop or slow down the progress so that means that their lifespan is shorter because the disease goes faster in a child... virginia, elizabeth, schuyler, and i all lost our father to huntingtons disease and jacey lost her father and sister to the same disease. jacey and virginia are progressing as the years passed and it's already been 4 years and jacey has declined a good bit along with virginia who is in a depressed state because she doesn't go to school and doesn't really have any friends besides jacey who lives 18 hours away. virginia is fully aware of what the outcome of having jhd will ultimately end in death because there is no cure or treatments and very little research... i would like to make this happen for the both of them before time runs out.
Organizer and beneficiary