Help us help Katie & Brendon cherish their time with Tucker

I have created this go fund me to help my daughter’s family. My grandson was born in Dec/23. He went to Children’s Hospital within a day of his arrival. His diagnosis was Pallative. All of Katie and Brendon’s days were spent with him. They didn’t think he would be able to come home. Well, he did and miraculously he is now four months old. Every day is a precious gift. They have nearly lost their little man seven times in the last week alone. They are doing the best they can but things can be hard. Tucker requires 24/7 care. His mom and dad want to spend what time they have with him. Hopefully this go fund me will allow anyone who has asked/would like to help, a way to do just that.

Katie said it best when she shared this on FB:

“Life with a terminally ill infant, that has a super rare genetic condition is hard. Past the acceptance is the reality of every day life. It’s having to build accessibility aids just to bathe your child because they don’t have many, if any, options that work with his specific needs. If you are lucky enough to find aids that MIGHT work, it’s usually $500-$3000. It’s needing a prescription for a special car seat that has to be shipped from the US because they aren’t available in Canada, just so you can do the bare minimum like attend medical appointments. It’s him having up to 40+ seizures in a day and having to let everyone who comes in contact with him, know what to do/not do when it happens. It’s the looks you get and how nobody knows what to say when you have to warn them that there is a very real chance that he could stop breathing while they hold him, and that he may or may not start again. It’s making sure he has a dim/dark area to rest because his tone keeps getting worse and he can’t close his eyes fully anymore when he sleeps. Even something as simple as his clothes fitting one day and not the next because he has swollen up so much. The list just goes on…But in the midst of all the medical, we get these moments that feel so normal. Moments where he is peaceful, happy, curious…moments that I will hold close to my heart long after he’s gone. #nicuwarrior #peroxisomaldisorder #dbifunctionalproteindeficiency”