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Hello family and friends,
For those who don't know our story, my son Sebastian, my mom Estela, and I have a rare skin condition called ichthyosis EI. Living with this condition means our skin is often thick, dry, and scaly, which can make daily life uncomfortable and challenging.
Sebastian and I are currently part of a study using the Thera-Clean micro bubbler. During this time, we have seen a tremendous improvement in our skin. For Sebastian, the scaling on his scalp has reduced and his hair is growing healthier. I have noticed that much of the thick scaling on my own skin has reduced. Using the micro bubble machine three times a week has helped rehydrate our skin, making it less dry, and Sebastian’s itchiness has gone down significantly. My mom Estela is not part of the study, but she would benefit from access to the device as well.
We have the opportunity to purchase the device and continue using it at home, which would allow us to maintain this life-changing care for all three of us. The cost is more than we can manage alone, so we are reaching out for help.
Thank you for taking the time to read our story and share it. Any donation counts, and every share of our story will help us reach others who may not know about ichthyosis. Your support means so much to us, and together, we can make a real difference in our daily lives.
For those who don't know our story, my son Sebastian, my mom Estela, and I have a rare skin condition called ichthyosis EI. Living with this condition means our skin is often thick, dry, and scaly, which can make daily life uncomfortable and challenging.
Sebastian and I are currently part of a study using the Thera-Clean micro bubbler. During this time, we have seen a tremendous improvement in our skin. For Sebastian, the scaling on his scalp has reduced and his hair is growing healthier. I have noticed that much of the thick scaling on my own skin has reduced. Using the micro bubble machine three times a week has helped rehydrate our skin, making it less dry, and Sebastian’s itchiness has gone down significantly. My mom Estela is not part of the study, but she would benefit from access to the device as well.
We have the opportunity to purchase the device and continue using it at home, which would allow us to maintain this life-changing care for all three of us. The cost is more than we can manage alone, so we are reaching out for help.
Thank you for taking the time to read our story and share it. Any donation counts, and every share of our story will help us reach others who may not know about ichthyosis. Your support means so much to us, and together, we can make a real difference in our daily lives.




