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We were blessed with our first child being a set of twins! On September 10th, we received a perfectly healthy anatomy scan for our identical twin girls. Just two weeks later September 23rd, at our follow-up exam, we were given the terrible news of our girls being diagnosed with TTTS (twin-to-twin transfusion syndrome). Left untreated, one if not both twins would not survive. The condition can progress as early as 24 hours, so surgery was our only option to save ideally both girls! We spent the next two days with additional ultrasounds and EKGs and multiple hospitals for confirmations and finding a specialist to tackle our case. At last Wednesday we got the surgery at Lurie Children’s hospital!
This past week has been a roller coaster of emotions, stress, and building financial needs. The surgery was done successfully, by an amazing team of doctors but the girls are not out of the woods just yet. Twin A is fighting infection, and Twin B is in the early stages of heart failure. Although surgery was done with no complications, it’s a matter of time for results. As of now, I am on bed rest for a minimum of 3-4 weeks with constant monitoring and medication. My loving husband is left alone to fight bills, housing expenses, and now piling medical bills. There’s a chance I may be forced to stay bedridden till delivery, whether that may be early or as close to 36 weeks as possible. We are willing to do anything for our girls. Anything helps get us by and alleviate some burdens while myself and the girls recover. Hopes and prayers the girls can pull through strong!
For education on TTTS go to: https://tttsfoundation.org
UPDATE: As of October 15th we’ve been given the majority clear of health. Both girls have survived the surgery. Which is absolutely amazing and we are so greatful. Baby A still is facing some challenges of a persistent umbilical vein and may potentially have an umbilical vein verix. Her growth has been slow but all else healthy. We are still hoping for a greater turn around and she’s still fighting. Baby B has made improvements but still is facing some thickening in her heart walls. This takes time to resolve but a potential it may not. Doctors have been very hands on and we are currently left with weekly and some twice weekly visits for ultrasounds and echos aside from other appointments and follow ups. I’m officially in the clear to go back to work in the 28th but it’s very minimal hours and very light duty. Now we wait to see how the girls keep improving and with hope aswell to keep them “incubating” as long as possible.
we appreciate every hope and prayer this far but please keep them coming!

