Help Us Bring a Powerful DMD Story to Life: Documentary Journey

One year ago, our family learned firsthand what it means to face Duchenne Muscular Dystrophy (DMD). This rare genetic condition changes lives in profound ways. Though there is no cure and there is no clarity about the future for our boy, we want to focus on raising awareness of the untold stories of individuals living with DMD right here in New York and beyond in a form of verbatim documentary storytelling.

This documentary will follow our son Yona’s journey alongside the local and global Duchenne community. It will weave together everyday family moments, urgent medical realities, and the groundbreaking science that holds promise for the future. The film’s heartbeat is the powerful truth: “time is muscle.” Every day matters, every breakthrough counts.

For many years I have devoted to documentary theatre through the Lost & Found Project. In that work, I’ve used real stories to create verbatim performances that heal, challenge, and connect communities. Though this new project—our first documentary film—feels deeply personal and at times painful to unpack, it is also a natural next step. We believe in healing through action and through the arts, and film can carry these stories to new audiences and create impact on a larger scale.

New York City, often seen as the place of endless opportunity— of dreams coming true. As a NYC-based actress and mother, I have lived that dream, balancing motherhood with professional life in a symbiosis I always cherished. But the diagnosis shifted everything: we quickly discovered that the city we call home is not equipped to support families facing Duchenne.

This film will shine a light on those challenges, but more importantly, it will open a dialogue and build awareness. Our goal is not to invite pity but to create a stronger, more compassionate community around us.

It will also help raise critical funds for medical support for New York–based boys living with DMD.

Your support will help cover the essential costs of production—from filming and editing, to music and animation that explain the science, to sharing this film in schools, hospitals, theatres, and communities where awareness can change lives.

All the supporters will be invited to a screening of the film upon completion.

Thank you for standing with us.