Help Us Bridge the Gap Between Science and Treatment - MEF2C

Stronger Together: Step Up for MEF2C

Help Us Bridge the Gap Between Science and Treatment

This September, we’re stepping up — and we need your help.

MEF2C Haploinsufficiency Syndrome (MCHS) is an ultra-rare genetic condition that affects only a small number of children worldwide. But while our community may be small, our determination is mighty.

We’re launching “Stronger Together: Step Up for MEF2C”, a month-long campaign to raise critical funds and vital awareness for the MEF2C Natural History Project — a foundational step toward clinical trials and future treatments.

This isn’t just research — it’s a regulatory requirement.

Without this project, we can’t move forward. It’s the bridge between promising science and real therapies for children living with MCHS.

Join Us This September!

We’ve got an incredible lineup of events to bring our community together and shine a light on MEF2C:

Sep 7 – Mini Run in Bury

A joyful, inclusive run for Mefties, siblings & friends. Wear MEFTY blue and celebrate our community spirit!

‍♀️ Vitality Westminster Mile – September 27

The Mall to Buckingham Palace, London

Take part in one of London’s most iconic running events — the Vitality Westminster Mile, a one-mile course that finishes right outside Buckingham Palace. It’s a celebration of movement, community, and inclusion. Open to all ages!

We’ll kit you out with a MEF2C Foundation t-shirt — let’s make some noise in MEFTY blue and raise awareness for MEF2C Haploinsufficiency Syndrome.

Walk it, jog it, run it — just show up and shine.

⚽ Sep 28 – Celebrity Football Match

Sellebrity Soccer is BACK! Join us in Hartley Wintney for a star-studded day of football, fun, and fundraising. Our ambassador Laike returns to the pitch alongside celebrity players — all stepping up for MEF2C.

How You Can Help

✅ Donate to this campaign — every pound brings us closer to treatment

✅ Join one of our events or host your own walk/run

✅ Share this page and your story to raise awareness

✅ Ask your employer to match your donation

✅ Use our hashtags to amplify the message:

#StepUpForMEF2C #MeftyStrong #MEF2C #MCHS

Whether you run, cheer, donate, or simply spread the word — you are part of this movement.

Together, we are unstoppable.

Thank you for stepping up for MEF2C.