At the time this was all happening my sister would call the Dr and watold there was nothing they could do for her. They wouldn't even see her. They were just left in the dark wondering what had happened to their very happy, loving, outgoing child.
Months later, after much research, they found out about PANDAS- Pediatric Autoimmune Disorder Associated with Strep and have been on an uphill battle with providers, mulitple medications, diet changes, and therapy over the last 4yrs. They have a provider now who not only understands PANDAS, but also knows how to treat it. Trynity has not responded well to a lot of the medication and the next step is IVIG.
The neurologist has ordered the IVIG treatment however, the insurance company has denied the resquest and all appeals. This treatment is costly and there is a chance that she may require more than one infusion.
I'm asking for assistance in helping Trynity get the funds so that she may have a chance to find that inner child locked behind her intrusive thoughts, tics, anxiety, and OCD. Please help if you can. Thank you
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- sarah gendron
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