Big Brother Mateo Fund
Donation protected
(Traducción en español abajo)
5 year-old Mateo has been diagnosed with Difuse Intrinsic Pontine Glioma (DIPG). It is a highly aggressive and difficult to treat brain tumor located at the base of his brain. There is still no effective treatment and no chance of survival. Only 10% of children with DIPG survive for 2 years following their diagnosis, and less than 1% survive for 5 years. The median survival time is 9 months from diagnosis. The medications that can be tried outside of trials are extremely expensive and not covered by insurance. We would like to reach out to everyone to help His parents, Alexander and Paloma Sparkman with the meds and anything that can make his life more pleasant. Also, the saddest part to say is that there are also funeral expenses. Any funds remaining after covering the family's needs will be donated to a leading researcher in the field of DIPG (to be determined) Possible candidates: St. Jude's, Stanford Children's Health (Moonshot4kids), Weill Cornell Brain and Spine Center. We greatly appreciate anything you can donate.
Mateo tiene cinco años y ha sido diagnosticado con Glioma Pontino Intrínsico Difuso (GPID). Tipo de tumor poco frecuente de crecimiento rápido que se forma en las células gliales en una parte del tronco encefálico llamada protuberancia. El GPID tiende a diseminarse al tejido cercano y a otras partes del tronco encefálico; es difícil de tratar y tiene un pronóstico (desenlace) precario. Por lo general, se presenta en niños. Aún no hay tratamiento efectivo y cero posibilidad de sobrevivencia. Los medicamentos fuera de los ensayos médicos son extremadamente caros y no cubiertos por seguros médicos. Nos gustaría pedir la ayuda de todos para los medicamentos y para hacer su vida lo más cómodo posible. Además, los más triste es que habrá necesidad de pagar el funeral. En el caso de que sobra dinero, será donado a una organización que es líder en la investigación de GPID. (por definir) Posibles candidatos: St. Jude's, Stanford Children's Health (Moonshot4kids), Weill Cornell Brain and Spine Center. We greatly appreciate anything you can donate.
5 year-old Mateo has been diagnosed with Difuse Intrinsic Pontine Glioma (DIPG). It is a highly aggressive and difficult to treat brain tumor located at the base of his brain. There is still no effective treatment and no chance of survival. Only 10% of children with DIPG survive for 2 years following their diagnosis, and less than 1% survive for 5 years. The median survival time is 9 months from diagnosis. The medications that can be tried outside of trials are extremely expensive and not covered by insurance. We would like to reach out to everyone to help His parents, Alexander and Paloma Sparkman with the meds and anything that can make his life more pleasant. Also, the saddest part to say is that there are also funeral expenses. Any funds remaining after covering the family's needs will be donated to a leading researcher in the field of DIPG (to be determined) Possible candidates: St. Jude's, Stanford Children's Health (Moonshot4kids), Weill Cornell Brain and Spine Center. We greatly appreciate anything you can donate.
Mateo tiene cinco años y ha sido diagnosticado con Glioma Pontino Intrínsico Difuso (GPID). Tipo de tumor poco frecuente de crecimiento rápido que se forma en las células gliales en una parte del tronco encefálico llamada protuberancia. El GPID tiende a diseminarse al tejido cercano y a otras partes del tronco encefálico; es difícil de tratar y tiene un pronóstico (desenlace) precario. Por lo general, se presenta en niños. Aún no hay tratamiento efectivo y cero posibilidad de sobrevivencia. Los medicamentos fuera de los ensayos médicos son extremadamente caros y no cubiertos por seguros médicos. Nos gustaría pedir la ayuda de todos para los medicamentos y para hacer su vida lo más cómodo posible. Además, los más triste es que habrá necesidad de pagar el funeral. En el caso de que sobra dinero, será donado a una organización que es líder en la investigación de GPID. (por definir) Posibles candidatos: St. Jude's, Stanford Children's Health (Moonshot4kids), Weill Cornell Brain and Spine Center. We greatly appreciate anything you can donate.
Co-organizers (2)
Robert Sparkman
Organizer
La Marque, TX
Alexander Sparkman
Beneficiary
Shari Herrick
Co-organizer