Help Adem Manage His Rare Disease (AT)

I am raising funds to help my sweet nephew, Adem Aslanturk, with managing his rare disease, Ataxia–telangiectasia (AT) ,a fatal genetic disease that attacks children, causing progressive loss of muscle control, cancer, and immune system problems.  Adem is a loving 6 year old who loves dinosaurs, books, and flowers.  He was misdiagnosed for the last several years with Cerebral Palsy, and a week before Christmas he was diagnosed with AT.  He requires special care as he has trouble eating, sitting up, and is non-verbal.   He has been in and out of hospitals since the age of 2 which has caused financial hardship to the family who has also welcomed a new baby girl this past year.  Adem and the family will need to travel to and from Baltimore to John's Hopkins University  in order to meet with doctors and determine possible treatments.  Right now, help is needed to cover past hospital bills from the many tests that were done and help to cover the current costs needed for his care, travel to Baltimore, and to assist in the costs for treatment.  I am also asking for funds to help Adem's parents stephanie and Ozcan to travel to the A-T Children's project Caretakers Weekend in Boston in April in order to learn more about this disease and how they best care for Adem from top doctors and specialists. Thank you for reading and for your support.