Help to Bring Our Baby to the Care He Needs

Help Our Noah Breathe, Eat and Come Home.

Our baby boy Noah is only one month and 16 days old, he continues to face daily, short and long term challenges. He has spent his entire life in the NICU, unable to breathe and eat on his own, not able to come home and be with his family. Struggling for hours at a time, imagine drowning and grasping for air consistently. Noah was born with Pierre Robin Sequence, a rare and complex condition that affects the development of his jaw and airway, making it extremely difficult for him to breathe and feed without high level medical assistance.

Because of the delicate nature of Noah’s condition, doctors have considered surgery, but they believe it is too risky right now. Each day, Noah struggles with breathing and feeding, and as his parents, it breaks our hearts to watch him face these challenges. Even more so not having a solidifying plan. But Noah is a fighter. Every tiny breath he takes, every swallow he manages, fills us with hope and determination to do everything we can to help him thrive.

This journey has been incredibly overwhelming for our entire family. The constant stress of Noah’s condition weighs heavily on me and my wife, Kiara. We are navigating every moment with fear, hope, and exhaustion. Our two-year-old daughter is also affected, as the demands of Noah’s care stretch us thin, and our attention must be unevenly divided between our two precious babies. The uncertainty and long hospital stays have taken a toll on all of us emotionally and physically.

Even after we overcome this, my wife may be forced to quit her job because daycare centers are unable to accommodate Noah’s complex medical needs. This would put even more financial and emotional strain on our family.

Recently, we learned about a groundbreaking non-surgical treatment developed at Stanford Medical Center in California — the only hospital in the United States offering this option. The treatment involves a specially designed device called an Orthodontic Airway Plate (OAP). This device helps keep Noah’s airway open and supports his ability to feed safely. Although he will have to relearn to feed as he is currently on a feeding tube. The OAP has already been successfully used with over 30 children who have similar conditions, boasting a 100% success rate.

Noah has been carefully evaluated and is considered an ideal candidate for this treatment. At first, we thought this option was beyond our financial reach, but as traditional treatments remain uncertain and carry risks, we are determined to pursue this opportunity — to give Noah the best chance at a healthy, happy life.

To receive this life-changing care, Noah will need to be transferred by air ambulance to Stanford’s NICU. He will stay there for approximately 2 to 3 weeks while the Orthodontic Airway Plate is custom-made specifically for him. Once the device is placed, Noah will be closely monitored for another 1 to 2 weeks to ensure the treatment is working and he is safe. Then the nicu team to decide to discharge or not. Overall length of stay is still up in the wind.

If all goes well, we will bring Noah home. However, his journey will continue with the need to travel back to Stanford every 4 to 5 weeks for follow-up appointments lasting about three days each, for up to six months. These visits are crucial to monitor Noah’s progress and adjust his care to ensure the best outcome.

This specialized treatment, hospital stay, and all associated care may not be and probably won’t be fully covered by insurance, as it is considered a non-traditional and non emergent intervention. Additionally, we have not qualified for any financial assistance due to income eligibility requirements. The expenses we face include:

* Air ambulance transfer with NICU team to Stanford in Palo Alto California — a necessity due to Noah’s fragile condition. est $65000-$200000

* The Orthodontic Airway Plate procedure itself, which may not be fully covered by insurance. We won’t know until he is at stanford and the nicu processes the referral to orthodontics dept.

* Hospital stays and NICU care at Stanford(probably covered)

* Travel, lodging, and daily expenses for both parents during the initial treatment and all follow-up visits. $8000- $12000

* Lost income due to time taken off work to care for Noah.

Noah’s first weeks have been a rollercoaster of hope and fear. He has endured emergency visits, escalating respiratory support, difficulty feeding, and many tests — including imaging and genetic studies — to understand his condition fully. Despite these hurdles, Noah has shown incredible strength and spirit. Every breath and every feeding attempt is a victory.

Our baby struggles with his airway every moment, often making harsh snoring, raspy and wheezing sounds as he fights to breathe. We worry constantly about aspiration, reflux, and the risk of heart, lung and brain damage. We have witnessed the toll this takes on his tiny body, but we also see a bright future if given the right care.

Our dream is simple yet profound: to see Noah grow strong, breathe easier, and feed safely. We want to give him the chance to live a full and joyful life, free from the constant fear of breathing difficulties, feeding complications or long term effects of conservative or traditional interventions. This new treatment offers a new kind of hope.

Your support will directly help cover the costs of this vital treatment and the extensive care it requires. It will give Noah the opportunity to receive a cutting-edge, non-surgical treatment that could dramatically improve his quality of life. It will help both of us be there for him every step of the way — in the hospital, during travel, and at home.

We know times are difficult for many, and asking for help is incredibly hard for us. But Noah’s health and future depend on us to swallow our pride, to advocate and ask for help. We simply may not be able to do this alone.

From the depths of our hearts, thank you for reading our story, sharing it, or donating. Your kindness and generosity mean the world to us and to Noah.

I didn’t share this initially but now the day has come. Come the week of 6/9 my son will be transferred. I’ve Tryed my best to get all the questions answered, but the dr will not be able to perform the procedure after this week as she will be out of town and wont be back until after he will be too old for the procedure to work. with the time constraints I haven’t been able to fully understand our financial obligations but we decided it is what it is, get our son to where he needs to be regardless.

Cashapp tbuchan2 Tyler buchanan

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With hope and gratitude,
Tyler & Kiara Buchanan