Help Tupperware Cowboy and Sister
Donation protected
Anyone who knows me knows my grandchildren. God has blessed us with 6. Two of our grands have a disease called Cystinosis, an orphan disease affecting less than 2500 in the world, 500 in the United States (check out Cystinosis Research Foundation).
Cystinosis is a rare disease that is typically diagnosed prior to age 2. Cystinosis is a genetic metabolic disease that causes an amino acid, cystine, to accumulate in various organs of the body. Cystine crystals accumulate in the kidneys, eyes, liver, muscles, pancreas, brain, and white blood cells. Without specific treatment, children with cystinosis develop end stage kidney failure at approximately age nine.
This is a disease that is progressive and extremely expensive. Meds are given around the clock. They are blessed with excellent insurance. However, no insurance pays for everything.
This family is hard working & God believing family. The financial strain of endless medical bills while even trying to find a diagnosis on our "Tupperware Cowboy" was one they were just reaching & while in recovery mode, the diagnosis for the daughter was given.
This money will assist with any previous hospital bills, the 1 year old's future hospital bills (as she now needs a Gtube like her brother) co-pays, deductibles, travel assistance, etc. If, by some miracle there is an overflow in donations, the parents have said they would like to put some toward their own home or extra spending money for their upcoming Make A Wish trip (that is only in the beginning planning stages). This will hopefully give much needed relief to a family whose main focus is their children. We all thank you for every single donation. We understand how sacrificing finances is genuinely a big deal. But most importantly we ask that you remember them all in your prayers; pray for all those affected by Cystinosis & their families, pray for a cure, pray for better treatments, & pray for strength as the parents navigate a world with four children... two fighting Cystinosis.
Your prayers are coveted.
Jeremiah 29:11 states : For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future. God is in charge. But, sometimes we are called to be the feet or the arms of help.
Exodus 17:11 reads, "So it came about when Moses held his hand up, that Israel prevailed, and when he let his hand down, Amalek prevailed. "Eventually, Moses became weary, and so Aaron and Hur responded by holding up his arms until the Israelites were able to finally defeat the Amalekites.
Sometimes families become weary facing challenges day in & day out. Thank you for reading & for considering to make a donation.
Cystinosis is a rare disease that is typically diagnosed prior to age 2. Cystinosis is a genetic metabolic disease that causes an amino acid, cystine, to accumulate in various organs of the body. Cystine crystals accumulate in the kidneys, eyes, liver, muscles, pancreas, brain, and white blood cells. Without specific treatment, children with cystinosis develop end stage kidney failure at approximately age nine.
This is a disease that is progressive and extremely expensive. Meds are given around the clock. They are blessed with excellent insurance. However, no insurance pays for everything.
This family is hard working & God believing family. The financial strain of endless medical bills while even trying to find a diagnosis on our "Tupperware Cowboy" was one they were just reaching & while in recovery mode, the diagnosis for the daughter was given.
This money will assist with any previous hospital bills, the 1 year old's future hospital bills (as she now needs a Gtube like her brother) co-pays, deductibles, travel assistance, etc. If, by some miracle there is an overflow in donations, the parents have said they would like to put some toward their own home or extra spending money for their upcoming Make A Wish trip (that is only in the beginning planning stages). This will hopefully give much needed relief to a family whose main focus is their children. We all thank you for every single donation. We understand how sacrificing finances is genuinely a big deal. But most importantly we ask that you remember them all in your prayers; pray for all those affected by Cystinosis & their families, pray for a cure, pray for better treatments, & pray for strength as the parents navigate a world with four children... two fighting Cystinosis.
Your prayers are coveted.
Jeremiah 29:11 states : For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future. God is in charge. But, sometimes we are called to be the feet or the arms of help.
Exodus 17:11 reads, "So it came about when Moses held his hand up, that Israel prevailed, and when he let his hand down, Amalek prevailed. "Eventually, Moses became weary, and so Aaron and Hur responded by holding up his arms until the Israelites were able to finally defeat the Amalekites.
Sometimes families become weary facing challenges day in & day out. Thank you for reading & for considering to make a donation.
Organizer and beneficiary
Beverly Foster
Organizer
Niceville, FL
Dawn Foster Strickland
Beneficiary