2026 has not been a good year for many of us, but it has been an especially rough year for us as a family.

January 1, Indiana Medicaid Waiver introduced the service cap, which made it so Kim's work situation was drastically changed--rather than working the stable clinical job she went to graduate school for, now about half of her work only pays 1/3 of what she was previously paid. In November, the state is looking to change Recreational Therapy services again, which will cause another pay cut.

During the summer, James had to suddenly purchase a replacement car, which was thankfully paid halfway by a few generous friends and halfway by the remainder of our bank account.

Also at the beginning of the summer, we all suddenly lost health insurance due to a paperwork error which we were told could not be fixed until open enrollment. We have also been told the boys do not qualify for Medicaid (because we do not have significant proof of disability), despite continued battles to get Medicaid. Insulin and g-tube supplies (for S) out of pocket have taken the majority of our funds, including putting us a few months behind on mortgage.

In October, we finally got a doctor to listen to medical concerns for T, and he is receiving emergency surgery (getting a g-tube/feeding tube) the first week of November, without insurance. At this point we don't know how we will pay for it but will be working with the Riley's social work team to figure this out.

We know the economy is wild and everyone is going through awful times financially, but we are desperate for any help anyone is able to spare in any form.

https://www.facebook.com/share/v/1D9GuRHWqB/