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Help Tatyana Beat Lyme Disease!
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As many of you might know my older sister Tatyana has been living with a rare untreatable autoimmune disorder for 17 years. Below is her story & current situation:
She was diagnosed in her mid 20s with dermatomiositis. This is a rare condition and there has not been a lot of studies done for this disorder. For over 8 years she was on extremely strong prescriptions just to stay functional and alive. These medications were so strong that they were traditionally used for cancer patients. Eventually they stopped helping her and were causing extreme side effects so she had to wean off of them only to find out there was no other treatment except experimental drugs that were unaffordable even with insurance. After her last appointment with her rheumatologist who had treated her for over 8 years she confirmed that there is no new studies or medication to treat her condition, she said there was nothing else she can offer her. According to studies, women with this specific autoimmune disorder don’t live past 15 years after diagnosis.
After being completely off the medication, things got much worse and within 3 months she went down from 160 lbs to 100 lbs, she lost most of her hair, developed open wounds that wouldn’t heal for months, became bed ridden, her daughter had to take time off from school in order to take care of her. During this horrific time she had to quit her job and try to stay alive. She lived everyday in excruciating pain in every part of her body to the point where she could not be touched or be able to do basic things that we all take for granted. After many years of this pain she had to be put on disability. Living off of disability and Medicare doesn’t cover the medical treatments she needs. Last year she found a world renown doctor in Woodinville, WA. Dr. Klinghart at the Sophia Institute who specializes in autoimmune disorders. He was able to diagnosis her with Lyme disease as the root of her issues. He also found many other viral and bacteria infections that come with the diagnosis of Lyme. She was also able to meet with a blood specialist that confirmed her diagnoses of Lyme.
Below are a few words from her:
“After many years of living a hopeless disabled life I couldn’t believe that there might actually be an explanation and treatment for my symptoms. This disease has stolen everything from me. Going to a doctor that didn’t write me off and was able to offer me answers that I didn’t know existed gave me hope. The journey to cure Lyme is very long, painful and costly.
I have sold everything I can to provide for my Lyme treatments so far. Now that I have answers, I’d like to continue fighting this battle but unfortunately I don’t have the finances. I wouldn’t have made it as far as I have without Gods help and provision. So i am being vulnerable and sharing my journey for the first time.
I am making a tough choice of sharing my personal struggles and walk through this extremely excruciating season of my life because I realize I need help from my community, my family and friends. Not only financially, I’m on here because I need prayer. Because of everything I have gone through so far, I hope that my choice of sharing this and reaching out for help may help someone else that is going through a similar dark season in their life.”
Tatyana and her daughter Sulamita will be traveling to Santa Maria Health Clinic in Mexico for their intense Lyme treatment program for 3 weeks. During this time she will undergo a variety of different treatments, testing, blood analysis, daily IVs, & whatever else the Lyme protocol consists of. We are asking for assistance as the intense treatment will be very costly.
If you would like to donate here are a few ways to give:
CashApp @SulamitaTikhonov
Venmo @Sulamita-Tikhonov
Thank you for taking the time to read her story. And thank you in advance for your generosity and most importantly prayers. May God bless you all
Donations
Organizer and beneficiary
Svetlana Kovalenko
Organizer
Bellingham, WA
Sulamita Tikhonov
Beneficiary