I am reaching out to ask for your generous support in

assisting a young, brave 5-year-old girl named Tahani, who is battling Nemaline Myopathy, a rare and life-

altering muscle disorder. We are looking to raise funds to help cover the costs of her ongoing treatment, medical expenses, and therapies as they are unable to receive any funding from the government, therefore, we would be

truly grateful for your support.

Tahani was diagnosed with Nemaline Myopathy at birth.

It is a genetic condition that affects 1 in 50,000 people

and their skeletal muscles which results in muscle

weakness and difficulty with movements such as walking,

breathing, speaking and swallowing. Unfortunately, there

is no cure. Tahani’s care consists of 1 on 1 support at all

times, and requires specialised care but only few doctors

worldwide have experience in managing this condition.

Tahani has just finished a month-long treatment at the Women’s and

Children’s Hospital, and while she is fighting bravely, the

road ahead is long and difficult.

Living with this condition means ongoing medical treatment, therapies, and equipment to support daily life, which places a huge strain on the family both emotionally and financially.

How Your Donation Will Help:

Your generous contribution will go directly toward:

● Ongoing medical treatments to manage and alleviate the symptoms of Nemaline Myopathy, and the complications that come with it for Tahani.

● Specialized equipment, including mobility aids and home modifications, to ensure she has a safe and supportive environment as she continues to grow and learn.

We understand that times can be challenging for many, but your support—whether large or small—can have a tremendous impact on Tahani’s future, including giving her opportunities that many of us take for granted such as the ability to be able to sit, crawl, walk and talk. Every donation is a symbol of hope and love for a little girl who deserves to live a happy, healthy life. Together, we can make a difference!