On April 22nd, 5-year-old Noah was rushed to St. Alexius Hospital and later transferred to Lurie Children’s Hospital in Chicago. That night, his family received heartbreaking news—Noah had been diagnosed with Ocular Myasthenia Gravis (OMG), a rare and chronic autoimmune disease that severely affects the muscles controlling his eyes, face, and body. It’s an extremely uncommon diagnosis in children.

Noah’s condition quickly worsened. After reacting badly to medications, he lost the ability to walk, talk, and move like he once could. He now requires a catheter, multiple medications, and constant support just to manage basic functions.

Doctors attempted plasma exchange (PLEX) treatment, but he couldn’t complete it before a second team of specialists intervened with concerns about its effectiveness. Now, his family is left in a place of deep uncertainty—waiting, hoping, and praying for progress while trying to manage the growing emotional and financial strain.

Noah’s mom, Celia, is unable to work as she must be by his side 24/7. As a single mother, this has added an overwhelming financial burden. Between long hospital stays, daily travel into the city, tolls, parking ($17–$48/day), meals, and pressing household expenses, it’s more than any one person should face alone.

If you’re able, please donate, share, or keep Noah and his family in your prayers. Every bit of support makes a difference during this unimaginable time.

From Celia and all of us—thank you for helping bring hope, strength, and healing to sweet Noah.