Help Support the Knorr’s

This page is dedicated to help support the Knorr family with medical and personal expenses.

Kyla Knorr is 28 years old and is a mother of 3 ( ages 7yrs, 6yrs and 1 yrs old) . Shortly after the birth of their 3rd child she begin experiencing muscle tremors and severe migraines.

Over the next few months she went through multiple doctor’s appointments along with multiple trips to the ER by ambulance. She was diagnosed with migraines and seizure activity. During this time she also developed memory loss and personality changes.

On may 9th Kyla was admitted to the Saint John hospital. She was not able to communicate , her brain was severely swollen and the causes unknown. The doctors believed it was an autoimmune disease resulting in her body attacking itself. In the hospital Kyla experienced several seizures and a stroke. After ruling out several diseases and cancer she was started on steroids and told she would spend the next few months in hospital and physiotherapy.

Kyla had developed permanent tremors and suffered severe memory loss that would take several months of recovery in hospital to treat.

On June 17th she was transferred to Stan Cassidy in Fredericton. The doctors thought she had Clippers disease which would require life long steroids for treatment. She was also put on anti-seizure medication. During this time Kyla was able to come home to her family on weekends, she would tire very easily, become quickly confused and was not able to hold her infant baby girl due to the continued muscle tremors.

August 12th Kyla started to worsen again neurologically, she had started to have her steroid dose decreased and shortly after began to have severe memory loss and seizure activity. She was taken to Halifax to see another neurologist and went through another round of testing including MRIs EEGs bloodwork and full body scans. After these tests and changing her medications the best diagnosis was still Clippers disease. Kyla was stable and continuing with her physiotherapy.

Kyla was given a discharge date of September 13th 2024, with full time in home care.

The morning of her discharge her husband Tony, received a phone call from the hospital. Kyla was found on the floor of her hospital room and had suffered a potential stroke and multiple seizures. Kyla was then put into a medical coma to help stop the continued tremors . She had very low oxygen levels and swelling her in her brain again. The doctors started redoing all of the tests she had done previously looking for anything that might have been missed. She was kept in the medical coma, the doctors not wanting to wake her up until they knew the cause of the tremors and seizures.

Kyla’s medical case was taken on by doctors in Toronto and the Boston Mayo clinic. The medical team was still unsure at what was causing her symptoms. Kyla was put on a ventilator while in the medical coma as her Oxygen levels were dropping severely low and she was no longer able to breathe on her own. Once the tremors were more under control, she started breathing on her own again and the doctors slowly decreased the medication that kept her in the medical coma.

On September 20th Tony went into the hospital to visit Kyla and had been told she was starting to respond to people talking to her. He came up to her bedside took her hand in his and started talking to his wife. She opened her eyes looked directly in his eyes and started to cry while squeezing his hand.

The doctors were unsure of how much brain damaged was done or how much of Kyla was going to come back once she was woken up. The fact that she recognized her husband when she opened her eyes gave us all hope that she was still in there somewhere and fighting to come back to us.

A diseases specialist was brought into Kyla’s medical team and a new set of testing was ordered. One of these tests was a biopsy of her intestines which came back positive for Whipples disease. Kyla was started on IV treatment for this disease.

On November 1st Tony received a call from the hospital to come in for a meeting. Kyla was not responding to the treatment, her most recent MRI showed new lesions in her brain and was beginning to worsen again. They are now in the process of sending her to Toronto for additional treatment.

The Knorr family has suffered major financial strain over the past several months and are now facing additional costs with Kyla being transferred to Toronto. Tony has had to reduce the hours of which he can work in order to care for his 3 children and manage his home. He will soon be facing long distance travel in order to be at the bedside of his loving wife while she undergoes additional treatments and testing in hopes of finding a concrete answer. Any help contributed will be devastatingly appreciated .