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Help support my niece, Maggie!

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I’ve been going with Maggie to the Mayo Clinic since she was diagnosed with NF2 about 14 years now.

This is the “one” tumor that they never hoped that they would have to do anything with but as she explained to you in her post. It’s at that time where she has to do something about it. If all goes well she will be at the Mayo Clinic for over a month which is going to get very costly. Just hoping friends that if there’s anyway to help her out even just a little bit would be so much appreciate it.

Thank you so much -Pam





This was one of Maggie's Facebook posts explaining her decision in her own words, May 14, 2021:


Now that all of my family members have been informed, I can now share the news with all of you.

Theres a tumor in my spinal cord (like that's a surprise). Where my neck meets my brain stem, C2 vertebrae. Its been there this whole time but it's bigger now. Its pushing on my windpipe making breathing, eating and swallowing at times difficult. My neurosurgeon has told me that it needs to come out before it does irreversible damage. If it's not taken out it will slowly cut all of my spinal fluid off from my brain. He wants to risk the surgery, although it's not likely a good outcome, theres a chance I will live. If the surgery goes sour, I will die. Or I will not be able to come off of the ventilator, then in a coma. I could be paralyzed from the neck down. These are all very significant percentage of risk. Now my fighting chance is that I make it out. I will lose spatial awareness of my arms and legs as in when I walk or lift something, I wont know where my appendages are. Might come with some memory loss as well. The surgery will require a month or so of physical therapy in Rochester and it could take a year or so to learn how to walk or use my arms again. I go back in September for a scan. If its grown, then surgery. If not, I might be able to buy myself some extra time.

We are trying to find a place to live as well. One without stairs. It's going to be difficult and I might need a wheelchair or walker for awhile.

So, even with ALL of that on my plate, I have a very elevated sense of gratitude for my support system. All of you help me fight. Every. single. day.

What's coming is coming and what will be will be but you bet your ass I will fight like hell to keep my life

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    Pam Rolfson
    Organizer
    Hartford, SD

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