
Help support EI Cure Project
Do you want to join me in making a difference? I'm raising money in aid of EI Cure Project UK and every donation will help. Thank you in advance for your contribution to this cause that means so much to me.
More information about EI Cureytic Project UK: The EI Cure Project UK connects with researchers and patient advocates globally to improve the treatment of EI Ichthyosis and work towards a curative treatment for those who wish to have that option.
My name is Heather and I am a mama to my gorgeous son Ruairi who was born with Epidermolytic Ichythosis. We are raising money to fund developing research for a cure. Please support me in running a half marathon. I will run the Carsington Water 1/2 marathon on Saturday 7th December 2024.
Organizer
Heather Lynn
Organizer
England
EI Cure Project UK
Beneficiary