Help Support Desirae and The Proctor's

Our names are Heather and Michelle, and we are hoping to help raise money for our sister, Chelsey, and niece, Desirae. Chelsey and Steven are not the type of people to ever ask for help, but we do not want them to have to worry about money at a time like this. Read below to see Chelsey's post, which shares what we know so far. With Chelsey needing to be with Desirae, the cost of travel for her and Steven, the boys at home, Inland closing, and the unknown future costs, they should be able to focus on Desirae right now and nothing else. If you are able, please donate what you can. We also can take Venmo, PayPal, Facebook Pay, or cash.

Venmo: @heatherpoissonnier

PayPal (no space, but won't let me post otherwise): [email redacted]

[email redacted]

Facebook Pay: Chelsey Proctor, Heather Poissonnier, Michelle Kasprzak

Cash is always an option, and can be given to myself, Michelle, Chelsey, or Laurie or Danny McKinnis.

If you are unable to donate, please keep Desirae and our family in your thoughts and prayers. She is one of the strongest kids we know! We will update as we know more. Please share!

Chelsey's post below:

I've been getting LOTS of messages and it's been hard replying to everyone individually, so with Desirae's permission, giving everyone an update and be warned, it is LONG!

As you may have seen from previous post, Des had a bacterial bronchitis/early pneumonia. At that time they discovered she was hypertensive/tachy. Discharged (still not happy about that) and told to follow up with PCP. Followed up with PCP who ordered some additional labs including blood cultures and a prescription for prednisone. At this point we were keeping an eye on her blood pressure at home. The next day, she became very hypertensive at home and symptomatic, so drove her pretty little buns back to the ER. They did more labs/workup and the provider decided to consult with Bangor (not sure why this didn't happen visit 1). The decision was made to admit her to the PICU. Though hypertensive, she was otherwise stable so they let me drive her up there. We arrived to Bangor around 1030pm. There was lots more testing including labs, CT scan & echocardiogram.

They immediately started treating her blood pressure with a nicardinpine drip and labetalol with BP checks every 5 mins (Des was NOT impressed).

The provider called me out of the room around 2am to show me the images from her CT scan which showed a very large mass in pelvic region…13cm to be exact the thought was that the mass was likely either compressing on vessels which could affect her BP or the mass could be releasing hormones that can cause the same thing.

Throughout the day we met with LOTS of providers including the oncology GYN team, pediatric oncology, pediatric surgeons, pediatric cardiologist, etc. They made a plan for an MRI later that day to get a better look at the mass. Meanwhile, they were constantly having to titrate the drip for her BP and unable to stabilize it. The pediatric intensivist was able to consult with the team in Portland and there was initially a lot of discussion about what the plan was going to look like whether she stayed in Bangor and continue working on stabilizing BP or transferring to Portland. After all testing was completed, images were sent and reviewed, the decision was made to transport to Portland as there was continued concern about her BP & HR. Des got her very first airplane ride with the life flight team and I was able to join them which was a huge relief as I was basically running on fumes at that point. A 22-minute flight and we made it safely to Portland where she was admitted to the PICU. Apart from labs and another IV, she had already done most of the testing. We met with several providers and once through with admission stuff, we were both finally able to get some much-needed sleep (even though broken). The next day was a lot of consultations, questions, and working to control that naughty BP. It was decided that surgery was next step but as she was an add on, they weren't positive on timing. After unsuccessfully stabilizing her BP, this allowed her to be bumped up to a more urgent case and the plan was made to operate that evening.

We met with the surgical staff and the plan was to go in laparoscopic and take a look. They Explained that the mass appeared to be on/near one of her ovaries, so there was a strong possibility they make need to take one. She was taken to the OR just before 7pm and the nurse called me at 930 to let me know that they were done and everything had gone well. The surgeon called shortly after to update me.

They were able to remove the entire mass and discovered it was a lot bigger than they realized and required a larger incision to get out of. They did end up also having to take one ovary as suspected but everything looked good on the other one. Pathology did their initial tests/reviews to determine what they suspect it might be, but we aren't sharing that at this point. It can take up to a couple of weeks for testing to be completed and what they suspect could be wrong.

Desi came back to the room around 1030 and was sound asleep. Once she started waking, she jumped on the biggest emotional roller coaster ever (normal with anesthesia). There was lots of tears and pain, and this was probably up there on top 3 least favorite moments of this experience because there is nothing worse than watching your child hurt and being entirely helpless They were able to get her medicated and eventually she was able to settle down and get some rest.

Post op day one was a bit of a doozy. Pain management was no easy task. There was constant adjustments to try to get her as comfy as possible. As you remember she was still battling her bronchitis symptoms including a cough and you can imagine how this feels with fresh incisions and a demon removed from her body. One positive, she was able to get up and sit in the chair for 5 minutes or so and did great. She was tachypneic for a good portion of the day ranging anywhere from 40 to 60, and little dips in her O2 and began to spike a fever.

At some point in the day, Des expressed that her right leg felt tingly and harder to move and her fingers were tingling. This led to frequent neuro checks by the providers and nurse. There was concern when comparing neuro check from the last one and noted to have been a slight decline. In addition she had some higher than desired BPs and developed a headache & dizziness, so just not miss a thing, they decided it was best to consult neuro and get her down for an MRI. Thankfully MRI looked fine, no clot or anything they could see to explain her symptoms. While at MRI she did become hypertensive again and continued so in the room for a bit. They had to give her some Benadryl for itching and she was beyond ready go sleep. While trying to sleep, her oxygen kept dropping low enough that they had to put her on oxygen. Today she was able to see the neurologist who is puzzled by her right sided weakness/numbness/tingling, so will be getting some labs for a couple of autoimmune possibilities. PT came and attempted to get her up which caused significant hypertension, dizziness & nausea, enough so that shes since been put back on the nicardipine drip. Consulted with nephrology for some of the mild kidney changes pre op and the BPs since. Its been a LOT but everyone has been amazing.

Our fingers are crossed that she will be able to turn a corner and start seeing some improvement & relief to her pain SOON. There is no concrete plan at this time. Focus is getting the BP controlled so we can get her out of the ICU, waiting for test results and go from there with positive thoughts only.

Thank you to everyone who has reached out, offered meals/etc for Steven and the boys, helped with the kids and whatnot. We are still just trying to process and our hearts are broken to see our girl having to go through this. Will continue to update as we can. Please continue to keep her in your prayers