Kicking Menkes Ass

Hello, my name is Sherrie and I have the honor and privilege of not only being Jaxsons favorite aunt, but also his God mother.

This sweet boy was born on June 30, 2023 to my brother Kyle and his fiancé Elianna.

There are some of you who know and others that do not, that this sweet boy was born with Menkes disease.

Menkes disease is a disease caused by a gene mutation that regulates the metabolism of copper in the body. This disease primarily affects male infants. Copper accumulates at abnormally low levels in the liver and brain but also higher levels in the kidney and intestinal lining.

There is no cure for this, it is terminal. We are all trying to remain positive and pray that this sweet boy is able to live a long and healthier life.

A few weeks ago Kyle and Elianna took a long drive to Ohio to meet with specialists. Jaxson is now on two shots of copper a day and will have to have blood work done every 6 weeks to check his levels.

We are worried, we are scared, but we are hopeful.

The amount of care he will need is far beyond what anyone could have imagined and even more stressful for these new parents.

They will continuously have to miss work for Dr visits while maintaining a home and bills.

I am asking for any donation, no matter how small to help support baby Jaxson.

If you are not able to donate please pass the information along. Get the word out and raise awareness for this terrible incurable disease that has rocked our world and turned it upside down.

From the bottom of my heart, thank you.