Stella is a bright, almost 4-year-old girl living with an ultra-rare genetic disorder (NEXMIF-related neurodevelopmental disorder or XLID/98) when she was only 13 months old. This rare disease is causing high volumes of daily seizures, including dangerous drop attacks that result in frequent injuries and hospital visits. Despite seven medications, CBD, and a strict Ketogenic diet, her seizures remain uncontrolled.

On June 5, 2025, Stella will undergo palliative neurosurgery to try to reduce seizure severity—a last-resort treatment to improve her quality of life.

She has significant developmental delays, uses a wheelchair, and requires full-time care. Her parents, Madeleine and Mitchell, have sacrificed a lot—Madeleine alone took 207 days of unpaid leave last year—to support Stella’s many medical needs.

They urgently need a vehicle that can be modified for Stella’s wheelchair and equipment. While the NDIS will fund the modifications, it does not cover the vehicle purchase—a cost far beyond what this family can afford, especially as they need to keep their current cars so both parents can keep working.

Madeleine and Mitchell have been hesitant to ask for help but now truly need your support. Your donation will make a real difference in Stella’s life and ease the heavy burden on her family.

Thank you for your kindness and generosity.