90K RUN in support of “Doing it for Stacy”

Hi there,

 

This is her story …

 

Stacy was diagnosed with a very rare and incurable neuroendocrine tumour in her cervix in October, unfortunately it has spread to her liver and pelvis. The cancer is rare, aggressive and it is stage 4. Stacy was also diagnosed when she was 15 with Lupus, Fibromyalgia and rheumatoid arthritis. She is unable to take any of her medication for this at present time due to her treatment she is receiving, so on top of her cancer she is in so much pain almost every day.

 

Daniel and Stacy have had a hard life… Their first child (Hayden) was born with a heart condition – congenital complete heart block, he had a pacemaker fitted at six weeks old. He has now had four pacemakers and now 18, he is hoping to go to University this year to study medicine as he wants to help others like those that have helped his family.

 

Their second child (Tia) was checked and had the same issues. She was very poorly and had fluid around her heart so they fitted a pacemaker within 24 hours of birth. Tia remained well for about two years but developed dilated cardiomyopathy (heart failure). Tia spent nearly a year on life support. Her only hope was a heart transplant, she waited five months. Stacy never came home once as she refused to come home without Tia, thankfully all went well and Tia is now eleven years post transplant. Stacy & Daniel were told the transplant would give her nine to fifteen years so they always have this hanging over them. During the pandemic Tia had two episodes of rejection. She was shielding and couldn’t go to school or even see her friends. She even wasn’t allowed out for the 30 minutes of exercise we were allowed, at the present time Tia is doing well.

 

 

Stacy’s partner Daniel is a builder and was having issues with his neck. They diagnosed a frozen shoulder. After numerous treatments, things were just getting worse. Eventually after nearly a year they agreed to a mri, what they were told next is just unbelievable - he has a mass/tumour of considerable size at the top of his spine that was causing all the pain. He is going into hospital on Tuesday the 25th January to have the tumour removed and it will be tested to see if it's benign or malignant. He has a very long road ahead of him. He hasn’t been able to work now for about four months and with his rehabilitation it will be months before he can work again.

 

Stacy’s Dad also is suffering from incurable cancer so together they are supporting one another, for him hearing that his daughter was experiencing the same thing was equally heart breaking. As a family they are all having to go through so much.

 

Stacy and her family are relentlessly researching different treatment plans to help prolong her life that are not available on the NHS and this is where you can all help there are lots of alternative options for treatment but just for consultations your looking at anything between £250.00 to £450.00 for half an hour. The initial indications are that the treatment needed will be in the region of £90,000. Stacy has been given a few months to live but with treatment we are hoping the prognosis will be improved. We would appreciate any donation however large or small.

 

So please Help  

Jamie Allen, Jake Oneill, Kyle Ewer, Will Cowen, Matt Crocker, Ben Kessell and George Goodenough help our best friend and his Mum

 

Thank you very much 

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