As most of you know, this year has flipped our family upside down. Sophia has been admitted to the hospital multiple times with multiple lumbar punctures done. She has a diagnosis of intracranial hypertension but continues to not present with typical symptoms. At this point all doctors in Florida agree she is past the level of care here. She now has an appointment with a team at the Children's Hospital of Philly in 2 weeks.

Unfortunately, I was not expecting the cost to be so high with train rides, hotel, co-pays, and food. With missing so much work from both Richard and me, money is becoming extremely tight and any help would be greatly appreciated. We are hopeful to finally have a plan in place to allow Sophia to live the life any kiddo should have. If you can not help we fully understand and appreciate all prays at this time that this nightmare will end.