Help SMC1A find a treatment

Hello, I am Devon, mother of a baby girl that has been diagnosed with SMC1A epilepsy that started at birth. SMC1A is a form of epilepsy that causes intractable seizures along with developmental delays. Our family is wanting to help raise 10,000 as our contribution to the SMC1A Foundation for research to help these sweet girls. There is a potential trial/treatment that has become available pending funding is raised.