Hi All, this is my sister Sinéad. Sinéad is an amazing woman, a great mother and aunt to my 3 daughters. A few years ago she was diagnosed with Progressive-Relapsing MS (PRMS). A rare form of MS (5%), PRMS is characterized by a steadily worsening disease state from the beginning, with acute relapses but no remissions.
Sinéad has been extremely brave in dealing with her illness being a mam and continuing to work. Unfortunately over the last few months her symptoms have been worsening.
There is a possibility of Sinéad going to Mexico to get Chemotherapy with stem cell treatment (HSCT). This treatment is on trial in a number of UK centres but not available for the type of MS Sinéad has. For Sinéad to get the treatment she needs, she will have to travel to a clinic in Mexico for a month. On her return she will need to be off work for a year and pay privately for medical care. Really hoping you can donate some money towards what will hopefully be giving my brave sister and her family a quality of life she deserves.
Here is a story from her daughter Erin the explains it much better than I can.
My Super Mum By Erin Kirkland – Age 10
A lot of people know my mum, and I really shouldn’t be telling you this, but… I think she is a superhero. THE EVIDENCE GADGETS: She has one gadget (like batman) called a FEZ which makes one leg bionic!!!! And another device which makes her other leg super strong. THE NICE NINE: Are a bit like the X-MEN or the Avengers. Dr-C, Dr-Web, Lorny, Sher, Pete-R, G-Ray of course me Eriny and my Dad Frazman and most important of all, my mum Neaders!!! We work together to help mum along the way. ADVENTURE fails: THE DOOR FAIL. Neaders and I were racing to see a show at the theatre, we were coming out of the toilets and the door, of course, closes on Neaders foot, she got stuck and fell, but I couldn’t get her foot out, a random person spotted mum and helped her, she was very embarrassed. THE GREEN MAN FAIL. Neaders was coming out of an interview and was crossing the road. It was a green man luckily, because mum, I, I mean Neaders fell flat on her face. A driver got out to help, but mum just stumbled away even though she had blood running down her legs. She was so embarrassed, AGAIN, What a sight??? THE ALMOST FAIL. Neaders, G-Ray, Lorny and Pete-R were in an elevator and Neaders came out first and tripped over something??? But G-Ray grabbed her hood so she didn’t face slam the ground Wait a minute those stories are a bit like in Iron man when he first tried on his jet boots, that was quite a fail. THE DOCTORS APPOINTMENTS: Dr-Web gave Neaders an oxygen test, she looked very funny it looked like a gas mask but blue…wait!!! Neaders looked like Bane from batman. Anyway next appointment… Dr-C gave Neaders an MRI scan, it looked like when Dr-Bruce Banner (The Incredible Hulk) did his radiation experiments. During the scan Neaders made a tune out of all the weird noises the machine was making, it was quite easy for her because she listens to Underworld and Daft Punk. Who knew appointments could be so exiting??? THE FATIGUE HITS…This is where Neaders works so hard that she can’t even lift a finger, LITTERALY! When she falls asleep she actually doesn’t wake up until about 6:00 PM and then goes back to bed at 8:00 PM. Even if I was exhausted I wouldn’t be able to sleep for that long. Like seriously, I didn’t know humans could sleep for that long. But the thing is she does this for three or four DAYS… like WHAAAAT??? But she does work SUPER hard… do you get it??? Huh!! Do you?? Because she’s a SUPER hero!!!!.... Okay I get it I’m bad at puns. Ooh My Gosh I get so distracted, it’s so annoying, well I was telling you about my mum being superhero, it’s true, but the real reason I think she is a superhero is: my mum has MS.