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Help Shayne fund a Power Wheelchair

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Hi, my name is Shayne. I am fundraising to purchase a power wheelchair.

 

I am 49. I was diagnosed with relapsing remitting MS when I was 21. Pat (my wife at the time) and I decided that I was going to be on a downhill slope from then on, so we sold everything we had and moved to Laos  in Southeast Asia for 5 years. If she were still with us, she would agree that it was the best time of our lives.

 

It worked! Aside from some minor MS complications while I was there, life was beautiful. We came back.n 2000. My first major relapse followed in 2001. They continued off and on until six years ago, when I progressed to 'secondary progressive M.S.'. In general terms, that just means that the remission part dosesn't happen anymore. It's been downhill  since then.

 

I've been in a manual chair full-time for about 8 months. I became a very strong, powerful manual chair user - a Rick Hanson wannabe. I was sitting on the fence about getting a power-chair for months: I was strong and fast with my upper-body. Why would I go for a power-chair now, while I was still able?I was all set on my super-light, titanium manual chair, which would have arrived in 3 months, and then this happened:

 

Last Friday night, I went to bed with both of my 'athletic' hands operating as normal. I woke up at five in the morning to go have a pee, and my left hand wasn't working at all: It was as if I'd had a stroke! I thought I did have a stroke, so called an ambulance and made my way to Western Hospital where they put it off to being a pinched nerve! "Pinched nerve!" I replied. "I sleep on my back with my arms at my side!" they insisted, and denied any possibility that it could be an M.S.  relapse. I thought that was pretty negligent, so I packed up my hospital bag again, and went off to St Mikes - my safe, home hospital on Sunday morning sure that they would call it a relapse and prescribe me some steroids to stop the relapse. They did not

 

I fought with the clinic for three days to get treatment. Finally, they put me on a three day course of massive doses of steroids. Too late and it made no difference: my left arm is mostly numb, and i cannot move or use my left hand at all! I am now partially paralyzed

 

Doctors had warned me in the past that 'it' (serous progression) would one day come, and it would hit fast and hard. They were right, and it did.

 

I desperately need a power chair.

 

I've aready got the quote - I was working on getting a chair before i lost my hand. I Am trying to get a government grant to pay 75%, but there is (of course) some mix-up in the file that could delay it for months. I'm betting on not, so fundraising for my expected payment so they can at least start the build. I have asked about a rental in the meantime, but it's $400 her month plus a $2000 deposit on a card,

 

I'll be updating regularly with vids and docs. I honestly don"t know everything I need or what's even available to help, but Im learning fast.

 

Thank you for reading and any help you can offer. Please consider sharing. If we get just $5 per share.... it quickly adds up.

I will run the campaign until September 1st.. Any extra will be saved in a wheelchair repair fund. Speaking with new wheelchair friends, I've learned that they need repairs pretty often. 'Freinds ' say that their repairs run $1500-$2000 per year! They are covered by the government progra?- ODSP. Ibam not. 

 

*there are other ways to helphi

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    Organizer

    Shayne Craig
    Organizer
    Toronto, ON

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