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Help shayden get life changing therapy

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I am asking for the help towards ABR therapy a life changing therapy that can really help my son and his growing deformed body. The therapy a year is £6000 I’m asking for the help to get him on to the program and start a therapy what will change his life.


My perfect little boy is 7years old.


Shayden has spastic/Dystonic cerebral palsy
he was born 31 weeks and at 4 days old had a big brain injury, he had Bilateral intraventricular haemorrhages, brain changes, Cystic periventricular leukomalacia, Porencephalic cysts he has hydrocephalus has a VP shunt draining fluid from his brain to stop any further pressure and brain damage it’s basically keeping him alive without it he would die.

He has a very complex brain and recently I’ve been told his Brain stops him from breathing he is due surgery in may to help give more airway when his brain tells him not to breathe he has epilepsy and is blind he can’t sit unaided he can’t walk, talk, crawl, even hold his own head but yet he remains the happiest
little soul he brightens up the rainiest days he has a personality like no other.

Shayden has many challenges but he smiles he laughs and he loves his life!!!
As Shayden has grown his become in lots of
pain due to his spasticity, and Dystonia 
The treatment his had is Botox and relaxant
drugs and it isn’t helping. 


He has very limited movement and head control which has impacted over the years on his body and the
way it’s growing, his strong muscles grow but
his weak ones remain weaker and weaker
which has meant he needs surgery to lengthen his muscles in his left arm, left wrist, right ankle and calf this could be avoided with this therapy i can completely reconstruct his whole body this will help a lot with pain the needing to rely on Botox and
drugs that make him floppy and affect his airway even more. I want the best quality of life  for him and I don’t want him to keep having surgeries when I’ve found a therapy that can help.

He has digestion problems,breathing problems and that’s all down to his collapsing rib cage, this therapy can help open up his breathing system and help him become stronger help with his weak and fragile bones. He has osteopenia which is the start of osteoporosis his at risk of easy fractures and more pain this therapy builds the bone density it will make him stronger.


Having a child with disabilities brings so much financial strain he needs so much equipment and therapy in order to progress and develop all these things cost so much money.


Any one who helps Shayden achieve this I will be forever grateful so will shay ❤️


lots of love Amy 

(his mummy)

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    Organizer

    Amy Perryman
    Organizer
    England

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