Hello, my name is Darianna, and I am the mother of Sebastian, a brave 7-year-old boy who is currently fighting a severe and refractory form of CIDP (Chronic Inflammatory Demyelinating Polyneuropathy).

For months, our family has been fighting not only this devastating disease, but also the heartbreaking reality that the treatment recommended by Sebastian’s medical team continues to be denied by insurance.

Sebastian urgently needs Rituximab, a treatment his doctors have considered medically necessary since November. Despite his worsening condition and repeated medical evaluations, the insurance company still has not approved it.

Every week that passes without this alternative treatment puts Sebastian at greater risk.

CIDP has progressively affected his entire body. Sebastian now suffers from:

-Severe weakness throughout his body

-Paralysis in his ankles

-Severe scoliosis

-Difficulty chewing and swallowing

-Loss of mobility and physical strength

Recently, Sebastian had to be admitted urgently to the hospital due to the progression of his condition. Doctors administered high-dose Methylprednisolone in an effort to stabilize him while we continue fighting for approval of the treatment he desperately needs.

As parents, watching our child lose strength while waiting for an insurance decision has been devastating.

We are creating this fundraiser to help cover Rituximab treatment costs.

Sebastian is an incredibly sweet, strong, and courageous little boy. Even through pain and weakness, he continues to smile, fight, and show strength beyond his years.

We are asking for help from our community, friends, and anyone willing to stand beside Sebastian during this difficult journey.

Every donation, share, and prayer means more than words can express. If you are unable to donate, simply sharing Sebastian’s story can help us reach someone who can.

Thank you for taking the time to read about our son and for helping us continue fighting for his future.

With gratitude,

Darianna