We are setting up this page for Shaun Carlin, who at 53, has recently been diagnosed with a Very Rare and Incurable Disorder called AL Amyloidosis. This disease can affect multiple organs and it's mainly the Heart and Kidneys in Shaun's case. The disease is so rare that Shaun underwent extensive Tests, Scans and Invasive Procedures, back in September, before the Doctors could provide him with an accurate diagnosis. We are all in Shock and are Devastated!
Shaun was immediately started on 3 different types of Chemotherapy and he is in his 8th month of 9 months treatment plan. In addition to Chemotherapy, an Immunotherapy called Daratumumab was added to the treatment plan after Shaun spent 5 weeks in Hospital back in February.
There is a Centre of Excellence in London specifically for patients with Amyloidosis. Shaun has been referred there by his Doctors, and he is anxiously waiting for his first appointment now in June. Essentially, we want to establish with the Amyloidosis Centre of Excellence in London, if anything further can be done for Shaun especially around Clinical Trials due to Shaun's diagnosis being Incurable and currently has a Poor Prognosis.
We have set up this Page in an attempt to ease the financial burden that Shaun and his Family are now faced with! All Donations Are Greatly Appreciated. Thank You For Your Support!
This Go fund me is set up on behalf of the Carlin family - All donations received will be given directly to the family to help with Shaun's treatment.
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- Josephine McDermott
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