Help Scott Davis Fight ALS: Urgent Medication Needed

Hi, my name is Lori Davis. Actually, it’s Lorraine for business purposes, and I’m creating this GoFundMe for my husband of 34 years, (Richard) Scott Davis, who’s been diagnosed with ALS. This is a particularly horrible diagnosis for anyone to receive, and we’re no different.

We thought we’d be okay financially with Medicare and the V.A. (Veterans Administration) being the responsible parties for the extra expenses this condition incurs. We had been assured by literally every professional involved with this diagnosis (and it IS a team of people) that if my husband served in the military, the V.A. pays 100% of all expenses, every time. We were so relieved until last week when we received letters of ‘Denial’ from both Medicare and the V.A.! We were and are crushed! We don’t know what to do or where to turn. He’s been waiting since November 2024 for a prescription to be filled that won’t be filled until coverage is provided for it, as it’s extremely expensive! The medication slows down the progression of the disease and we waited 6 months to be denied what every other veteran has received full coverage for. In that 6 months, he’s lost 100% usage of his left arm and about 90% use of his right arm, hands, shoulders, etc., and without this medication, he likely won’t last a year. This is heartbreaking to write but it’s what we have as our reality now.

Personally, DOGE and that horrible chainsaw joke(?) have destroyed all of our hopes and chances of his having any mobility or comfort or even abilities like for bathing, getting up out of a chair, maybe even not struggling just to still feed himself… but with all the government cuts to everything we were counting on as earned and paid for benefits have been snatched out from under us. I just don’t know what else to do. With the medication, I might have him around for years! Without it, he just won’t last that long and it’s going so fast! Please, anyone, anything you can spare, literally means life or death for Scott.

The medication alone is around $15,500 a month! I hate that money is the difference between Scott living or dying! It’s wrong! It’s wrong that his benefits have been denied! He paid for and earned them! Twice as many military develop ALS than the rest of the population, which is why they used to cover the costs of it. It’s obvious that it’s from something they’ve been exposed to.

All who’ve known Scott know that just the diagnosis of ALS is soul-crushing. But to go through it without any of the necessities it demands is beyond cruel.

I apologize for the harsh directness of my plea… but there just isn’t any pleasant way to put it.

God bless all of you who have taken the time to read this far. It’s much appreciated and please, keep us in your prayers? Thank you,

Scott and Lori Davis